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WSSA · Weaver Syndrome Support Association
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Hi again   Message List  
Reply | Forward Message #158 of 481 |
Re: Hi again

--- In WSSA@yahoogroups.com, "dora7417" <dora.alaminos@...> wrote:
>
> Hi to you all again. It has been some time since I have been able
to
> spend a moment reading and catching up. We have just come back
from
> a months holiday at my parents home in Spain and the rest has done
> us all good. Now its back to the routine of appointments and
> specialists etc etc. I'll admit to feeling a little sick at
having
> to come back to the real world!
>
> Emma is two now but is still not walking and weighs over 32lbs..
Our
> Physio talked about stepping up the exercises after the summer but
> she also stressed that there are no guarantees that Emma will
walk..
> I cannot accept this. I remember reading that there was another
> little boy .. Brandon I believe who was a late walker.. Is he
> walking now?
>
> Emma is still not vocalizing, the occasional humming and excited
> noises is all we have at the moment.. Were any of your children
> really late at vocalizing?
>
> With respect to a question raised by another mother regarding the
> chances of having another child with weavers, a lot of us have
other
> children that are fine.. so surely the chances of having a second
> child with weavers must be slim! I was surprised to see that DR
> Weaver had suggested the chances of being as high as 50%. I too
> want to add to my family so that Emma has a good support system in
> place and I was waiting for Emma to start walking and be potty
> trained... oh and to win the lottery!
>
> Hope you have all managed to have a decent brake and that all the
> kids are doing okay.
>
> best wishes
> Dora
>HI DORA I JUST THOUGHT I WOULD EMAIL YOU . I HAVE JUST JOINED THE
GROUP IN THE LAST COUPLE OF DAYS. HOW IS EMMA NOW? SO MUCH OF WHAT
SAID IS A COMPLETE REPLICA OF WHAT MY SON LIAM WENT THROUGH HE 7 NOW
AND HE IS A VERY HEADSTRONG BOY. I HAVEW CHOSEN NOT TO HAVE A SECOND
CHILD BECAUSE AS WELL AS WEAVERS LIAM WAS AKLSO BORN WUTH RARE SKULL
DISORDER. I HAVE ENCLOSED A PICTURE OF LIAM







Tue Aug 22, 2006 5:59 pm

sandra239656
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Message #158 of 481 |
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Hi to you all again. It has been some time since I have been able to spend a moment reading and catching up. We have just come back from a months holiday at...
dora7417
Offline Send Email
Sep 4, 2005
8:26 am

... to ... from ... having ... Our ... walk.. ... other ... GROUP IN THE LAST COUPLE OF DAYS. HOW IS EMMA NOW? SO MUCH OF WHAT SAID IS A COMPLETE REPLICA OF...
sandra239656
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Aug 22, 2006
6:01 pm

My son, Alex, started walking at 15 1/2 months. we did lots of therapy for him, though. He also hated to walk on carpet. I think it was not stable enough...
Mary Hearing
momofalex031505
Offline Send Email
Aug 23, 2006
3:33 am

This message was initially a reply to Dora (Emma's mum). I was excited to see a mom of a Weaver's girl. I've been corresponding with Dr. Weaver over email, ...
Ralph Pot
ralph_pot
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Sep 7, 2006
1:35 am
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