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WSSA · Weaver Syndrome Support Association
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Reply | Forward Message #123 of 481 |
Hi to you all again. It has been some time since I have been able to
spend a moment reading and catching up. We have just come back from
a months holiday at my parents home in Spain and the rest has done
us all good. Now its back to the routine of appointments and
specialists etc etc. I'll admit to feeling a little sick at having
to come back to the real world!

Emma is two now but is still not walking and weighs over 32lbs.. Our
Physio talked about stepping up the exercises after the summer but
she also stressed that there are no guarantees that Emma will walk..
I cannot accept this. I remember reading that there was another
little boy .. Brandon I believe who was a late walker.. Is he
walking now?

Emma is still not vocalizing, the occasional humming and excited
noises is all we have at the moment.. Were any of your children
really late at vocalizing?

With respect to a question raised by another mother regarding the
chances of having another child with weavers, a lot of us have other
children that are fine.. so surely the chances of having a second
child with weavers must be slim! I was surprised to see that DR
Weaver had suggested the chances of being as high as 50%. I too
want to add to my family so that Emma has a good support system in
place and I was waiting for Emma to start walking and be potty
trained... oh and to win the lottery!

Hope you have all managed to have a decent brake and that all the
kids are doing okay.

best wishes
Dora





Sun Sep 4, 2005 8:26 am

dora7417
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Message #123 of 481 |
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Hi to you all again. It has been some time since I have been able to spend a moment reading and catching up. We have just come back from a months holiday at...
dora7417
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Sep 4, 2005
8:26 am

... to ... from ... having ... Our ... walk.. ... other ... GROUP IN THE LAST COUPLE OF DAYS. HOW IS EMMA NOW? SO MUCH OF WHAT SAID IS A COMPLETE REPLICA OF...
sandra239656
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Aug 22, 2006
6:01 pm

My son, Alex, started walking at 15 1/2 months. we did lots of therapy for him, though. He also hated to walk on carpet. I think it was not stable enough...
Mary Hearing
momofalex031505
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Aug 23, 2006
3:33 am

This message was initially a reply to Dora (Emma's mum). I was excited to see a mom of a Weaver's girl. I've been corresponding with Dr. Weaver over email, ...
Ralph Pot
ralph_pot
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Sep 7, 2006
1:35 am
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