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I think I have talked with you before, I have a almost 4 year old with weaver syndrome. His name is Devon. Devon was diagnosed by DR J Martin, and confirmed by DR. Weaver via chart, x-rays and pictures. They also had Devons chart etc. sent to a DR. in London that was studying over growth syndromes. We live in Washington State, its a long way to Indiana, but I guess some would have farther to travel.
How did DR. Weaver feel that your child was doing? As far as the others that have been diagnoses, does your child fit in everything, or most? Devon seems to have a lot of health problems that we are constantly battling as well, any mention of that? What did he say was "normal" to expect? Like height/weight, puberty, schooling, developmentally, socially?
I would love for Devon to go see him, but It would take a lot of time and money, unfortunately we don't have spare of either right now.
I hope to hear from you soon and hear everything that DR. Weaver said.
April
----- Original Message -----From: d auvenshineSent: Monday, August 08, 2005 2:58 PMSubject: Re: [WSSA] Dr. Weaverit did not take long he fit me in around my schedule really i told him when i was coming that way because we went for something else also and he worked us in around that. He spent several hours taking pictures, answer questions and taking measurements. alot of it was for reseach to find the gene that is altered but he answered any and all questions i had. he was very helpfuldanielle
littledebif <littledebif@...> wrote:How long did it take to get into see Dr. Weaver? What information did
he give you that your other doctor hadn't?
Debi__________________________________________________
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