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Hi! It is great hearing from you!! How did the trip to the DR go? Is it really worth the trip? Devon does not do well in cars for long periods of time. I might be the mother you've talked to before from Washington. I and another on the coast(Everett) are the only weaver moms in WA the I know of.
I have a 3(almost 4) yr. old with weavers as well. He is not too much smaller than my 10 yr. old. Actually his feet are larger.
Hope to hear from you soon!
April
----- Original Message -----From: barretts10_1_94Sent: Wednesday, August 03, 2005 2:10 PMSubject: [WSSA] new members
Hello Everyone,
We have a 6 year old son who was diagnosed with Weavers Syndrome at
one month of age. We are so glad to be able to connect with other
families who are experiencing some of the same things we are. Have
any of youe ever attending the Sotos/Weavers Conference? Is it worth
while?
We are really struggling with what to do for schooling for our son.
He will be entering kind. this year and we are sending him to a
private christian school where he will have a full time aid
assisiting him. If you have a WS child that is slightly older than
Beaux would you please give us any suggestions you have on
education. I understand that each child is very different, any good
ideas will help.
Also we would like to have more children and are concerned we could
have another child with WS. I was just recently pregnant with twins
and lost them to a miscarriage at 16 weeks, no reason for the
miscarriage was found. Have any of you had more than one child with
Weavers syndrome. If so, were you able to diagnose WS while you were
pregnant.
Thank you for your help,
Charlyn Barrett
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