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Hello my son is only three and he is enrolled in a preschool for special needs children through our school system he went a few weeks last year and is going this year and it is doing him wonderful. I live in Ga and we have all kinds of programs head start if you have that in your area may be something to look into. We saw Dr. Weaver this summera nd we were told that there is a 50/50 chance of having another child with Weavers and also of your child hac=ving a child with Weavers. I'm not real sure what level your child is on but I want to share this wiht you I live by God only gives you what he feels you can handle. I love my son dearly he is only 3 and he is th4e size of my 6 year old . But he has made me look at things in a very diffrent way. When he was a baby he sty\ayed sick alot and I almost lostr him a few times because his immune system is low and it made me realize you never know when your child can be taken away enjoy
every day as if it is your last together that is what I do . Please feel free to email me back I love talking to others with children like my Shane they are truely special.
talk to you later
Danielle Auvenshine
barretts10_1_94 <barretts10_1_94@...> wrote:
barretts10_1_94 <barretts10_1_94@...> wrote:
Hello Everyone,
We have a 6 year old son who was diagnosed with Weavers Syndrome at
one month of age. We are so glad to be able to connect with other
families who are experiencing some of the same things we are. Have
any of youe ever attending the Sotos/Weavers Conference? Is it worth
while?
We are really struggling with what to do for schooling for our son.
He will be entering kind. this year and we are sending him to a
private christian school where he will have a full time aid
assisiting him. If you have a WS child that is slightly older than
Beaux would you please give us any suggestions you have on
education. I understand that each child is very different, any good
ideas will help.
Also we would like to have more children and are concerned we could
have another child with WS. I was just recently pregnant with twins
and lost them to a miscarriage at 16 weeks, no reason for the
miscarriage was found. Have any of you had more than one child with
Weavers syndrome. If so, were you able to diagnose WS while you were
pregnant.
Thank you for your help,
Charlyn Barrett
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