--- In WSSA@yahoogroups.com, "recon_rev" <recon_rev@y...> wrote:
>
> My wife and I have a six year old daughter who was diagnosed at age 2
> 1/2 by Dr. Weaver himself in Indiana. We live in KY and I believe I
> have spoken with one of you, (a mother from Washington state). I have
> been hoping to either find more parents or start a support groups
> myself, and I applaud the moderator's efforts in this group. We were
> told by Dr. Weaver that our daughter was number 33 on the planet
> diagnosed with Weaver. I would love to hear more from you and the
> journey you have been on and the discoveries you have made. Anything
> I can help with, let me know.

Hi,
My name is Charlyn Barrett and I just joined this group today. We live
near Toledo, OH and my son Beaux is 6 yrs. old with Weavers Syndrome.
I would enjoy talking with you on the phone if that would be OK with
you. Please let me know. Thank you.