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WSSA · Weaver Syndrome Support Association
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Reply | Forward Message #108 of 481 |

Hello Everyone,

We have a 6 year old son who was diagnosed with Weavers Syndrome at
one month of age. We are so glad to be able to connect with other
families who are experiencing some of the same things we are. Have
any of youe ever attending the Sotos/Weavers Conference? Is it worth
while?

We are really struggling with what to do for schooling for our son.
He will be entering kind. this year and we are sending him to a
private christian school where he will have a full time aid
assisiting him. If you have a WS child that is slightly older than
Beaux would you please give us any suggestions you have on
education. I understand that each child is very different, any good
ideas will help.

Also we would like to have more children and are concerned we could
have another child with WS. I was just recently pregnant with twins
and lost them to a miscarriage at 16 weeks, no reason for the
miscarriage was found. Have any of you had more than one child with
Weavers syndrome. If so, were you able to diagnose WS while you were
pregnant.

Thank you for your help,

Charlyn Barrett





Wed Aug 3, 2005 9:10 pm

barretts10_1_94
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Message #108 of 481 |
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Hello Everyone, We have a 6 year old son who was diagnosed with Weavers Syndrome at one month of age. We are so glad to be able to connect with other families...
barretts10_1_94
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Aug 3, 2005
9:10 pm

Hello my son is only three and he is enrolled in a preschool for special needs children through our school system he went a few weeks last year and is going...
d auvenshine
ddauvenshine
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Aug 4, 2005
4:52 pm

Hi! It is great hearing from you!! How did the trip to the DR go? Is it really worth the trip? Devon does not do well in cars for long periods of time. I might...
Ryan & April
hooperapril
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Aug 5, 2005
7:34 am
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