THANK YOU FOR CHOOSING TO JOIN US! I HOPE THIS SITE HELPS YOU TREMENDOUSLY. PLEASE TAKE A MOMENT TO LOOK OVER THE SITE. THERE ARE SOME VERY USEFUL LINKS AND...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Jul 1, 2007 4:46 pm
662
Hi, I just joined this group. My daughter is 9 years old,and has been suspected of having an overgrowth syndrome for quite some time. She is around 100 lbs,...
... been ... hi cheryl,unfotunately this site isnt very active,i myself am guilty of only coming on here very occasionally,welcome and best wishes to you and...
THANK YOU FOR CHOOSING TO JOIN US! I HOPE THIS SITE HELPS YOU TREMENDOUSLY. PLEASE TAKE A MOMENT TO LOOK OVER THE SITE. THERE ARE SOME VERY USEFUL LINKS AND...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Aug 1, 2007 4:48 pm
665
Reminder from: UndiagnosedOvergrowthSyndromes Yahoo! Group http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Candra's Birthday Tuesday August...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Aug 14, 2007 4:41 am
667
Reminder from: UndiagnosedOvergrowthSyndromes Yahoo! Group http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Ireland Campbell's Birthday Sunday...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Sep 16, 2007 5:08 am
669
I am now to be referred to as Dr. Jenkins haha ;) Took me about a month to get fully accredited, but after ringing these ppl 1-415 267 3940 they got me...
sherry-heath862@...
Nov 7, 2007 3:10 pm
670
I am now to be referred to as Dr. Jenkins haha ;) Took me about a month to get fully certified, but after ringing these ppl 1-415 267 3940 they got me setup at...
sherry-heath862@...
Nov 8, 2007 4:08 am
671
I created this cool friends network and added you to my friends network. Hit-up now: http://makegirlfofriend.googlepages.com/girlfriends.htm...
Hi Everyone..our names are Coy and Benita Greene and our daughter has Beckwith-Wiedemann Syndrome. She is 7 months old adorable, sweet and our little...
My name is Jen and I am the mother of a 1 yr old, who for the past year has been a dwarf, and now they are saying he is a giant. At birth he was a whopping 9...
hi jen,sorry to hear youve all bee through so much,i dont come on here very often as this sites not really that active,my son is most probably sotos and we are...
Maxine- I actually do not know what makes them think that it is Sotos. I am guessing the size and shape of his head. I really do not know. How accurate is...
Hi Jen I can imagine how confused you must be by such diverse diagnoses and I am so sorry that Paul has so many health issues. I am afraid that this site is...
hi, i think its quite accurate,but i now understand from michaels doctors that you can still have sotos and test negative for it,its a fairly new test and...
Maxine, I am guessing that the main feature is the size and shape of his noggin. It is a whopping 53.5. He has always had a huge head. He is 27.5 in long,...
Hi Jenny I might be wrong but I am sure that children with Sotos have an arm span which more or less equals their height. Susan UK ... From: Jennifer Rodgers ...
Hi Jen, I am a member of the Sotos site as well as this site. My son is diagnosed as Sotos-like and is now 8 years old. The brains of Sotos individuals are ...
Hey Krystal, You may also want to look at chromodisorder.org for help..hope this helps! Benita Mom to Bella 9 1/2 months (beckwith-wiedemann syndrome), Ciaira...
Hi Cheryl, My name is Benita Greene, I live in NC (US), our daughter Bella is 9 1/2 months and has Beckwith-Wiedemann Syndrome. Welcome, if I can be of any...
Hey Maxine, I don't know if you ever found out with your sons issues with touch of water and so forth may have been, but I thought I would mention Sensory...
Hello to all! I just wanted to introduce myself. My name is Amy and I live in Janesville, WI. My son is 5 years old and his name is Connor. Connor recently...
