Reminder from: UndiagnosedOvergrowthSyndromes Yahoo! Group http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Victoria's Birthday Tuesday January...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Jan 16, 2007 6:24 am
615
I have not yet had my son diagnosed for Sotos, but have been quietly investigating this syndrome. My son will be 4 soon and continues to drool excessively....
I'm sorry but it doesn't sound like my 4 year old, who does have Sotos. The main differences are that my child stopped excessive drooling at around 2 or early...
Hi Wahine Welcome to the group. My daughter Shannon is 9 and her diagnosis is Unrecognised Overgrowth Syndrome. This means that although she has just about...
Hello, My son drooled until he was about 4. He is still undiagnosed. I'm familiar with Sotos because he has similar issues. There used to be an awesome website...
Hi Maria sorry I dont post often here, but just wondered have they said that the other name for Bannayan Zonana could be Bannayan Riley Ruvalcaba syndrome? Not...
hi julie, thank you for your response. could you tell me more about the gluten and casein free diet? thanks, Wahine Julie Younger <jyounger@...> wrote: ...
Hi Krystal I was really interested to see your lovely photos. Your pictures, from the eyes upwards, of Liam, and of Rowan when younger (but not the latest...
Hi!! My name is Amy and I joined this group because my son Chance was born with several rare brain anomalies, some affecting the hormones he produces. Up until...
Reminder from: UndiagnosedOvergrowthSyndromes Yahoo! Group http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Happy Valentines Day! Wednesday...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Feb 14, 2007 5:51 am
626
I can't say that I notice a shelf or ridge on their forehead. However, I do notice an "odd" shape to the back of Liam's head. Testing for Rowan, Aidan & their...
Liam & Rowan are affected by BRRS (Bannayan-Riley-Ruvalcaba Syndrome). Aidan is unaffected. I go back in May to discuss what the future holds for us now. I've...
I just deleted several spam messages and banned their authors. I also removed some members whose email addresses are no longer valid. If you find that you...
hello everyone,i have been absent from the group for a long time,my internet broke plus other issues so i wasnt around ,i apologise for this as i had only just...
hi everyone, i thought id let you all know the latest on my son michael,some of you might remember him from when i was on line a long time ago!michael is now...
THANK YOU FOR CHOOSING TO JOIN US! I HOPE THIS SITE HELPS YOU TREMENDOUSLY. PLEASE TAKE A MOMENT TO LOOK OVER THE SITE. THERE ARE SOME VERY USEFUL LINKS AND...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Jun 1, 2007 6:05 pm
660
Karen have added you to her favorite list, check Karen's profile here http://karenabtpassion.googlepages.com/bikerchicks.htm...
THANK YOU FOR CHOOSING TO JOIN US! I HOPE THIS SITE HELPS YOU TREMENDOUSLY. PLEASE TAKE A MOMENT TO LOOK OVER THE SITE. THERE ARE SOME VERY USEFUL LINKS AND...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Jul 1, 2007 4:46 pm
662
Hi, I just joined this group. My daughter is 9 years old,and has been suspected of having an overgrowth syndrome for quite some time. She is around 100 lbs,...
... been ... hi cheryl,unfotunately this site isnt very active,i myself am guilty of only coming on here very occasionally,welcome and best wishes to you and...
THANK YOU FOR CHOOSING TO JOIN US! I HOPE THIS SITE HELPS YOU TREMENDOUSLY. PLEASE TAKE A MOMENT TO LOOK OVER THE SITE. THERE ARE SOME VERY USEFUL LINKS AND...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Aug 1, 2007 4:48 pm
665
Reminder from: UndiagnosedOvergrowthSyndromes Yahoo! Group http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Candra's Birthday Tuesday August...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Aug 14, 2007 4:41 am
667
Reminder from: UndiagnosedOvergrowthSyndromes Yahoo! Group http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Ireland Campbell's Birthday Sunday...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Sep 16, 2007 5:08 am
669
I am now to be referred to as Dr. Jenkins haha ;) Took me about a month to get fully accredited, but after ringing these ppl 1-415 267 3940 they got me...
sherry-heath862@...
Nov 7, 2007 3:10 pm
670
I am now to be referred to as Dr. Jenkins haha ;) Took me about a month to get fully certified, but after ringing these ppl 1-415 267 3940 they got me setup at...
sherry-heath862@...
Nov 8, 2007 4:08 am
671
I created this cool friends network and added you to my friends network. Hit-up now: http://makegirlfofriend.googlepages.com/girlfriends.htm...
Hi Everyone..our names are Coy and Benita Greene and our daughter has Beckwith-Wiedemann Syndrome. She is 7 months old adorable, sweet and our little...
