hi my name is liz tombs, and i have sotos syndrome, and ive had it for the past 27 yrs, and it can some times be a pain in the but, if there are any other...
Hi Liz, Just curious where you are from? We live in the USA, and my son is 5 years old and has Sotos Syndrome. He gets services and funding based on the...
Hi Liz I would definitely recommend you try the other site as there are a couple of mums on there who are very knowledgable about Sotos. However I think the ...
Hi, Everyone, My first name is Jonathon. I'm currently an undergraduate student in Genetics and Molecular Biology. I'm joining this group because I want to...
Jonathon, We need more people who are enthusiastic about curing genetic disorders!!! This group is quite slow right now but I look forward to hearing more...
Hi Jonathan, If you want more contact with parents of children with Sotos Syndrome there is another yahoo group that is very active. I think some of them ...
Soto Syndrome Literature Review In the Nature Genetics article titled "Haploinsufficiency of NSD1 causes Sotos syndrome," that was published online 18 March...
Soto Syndrome Literature Review In the Nature Genetics article titled "Haploinsufficiency of NSD1 causes Sotos syndrome," that was published online 18 March...
Hi Jonathan, There are several research papers on Sotos out there. Many of the children on the other Sotos site have been diagnosed by two of the experts on...
Hi! I just wanted to let other parents, whose babies have Sotos syndrome like symptoms but no diagnosis, know about this functional neurological syndrome: the...
My 5 year old son has been diagnosed with autism/asperger's recently, because of his behaviours and speech. He has fast mood changes, and lashing out snarling...
Hi Donna Autism and Asperger Syndrome can both be features of various Overgrowth Syndromes. Your son's height and head size could also be features of this ...
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday July 18, 2005 ...
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Jul 18, 2005 2:56 pm
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Hello! Look at this healthcare information directory. URL : http://www.hi-fiweb.com/users/anusha/ Cheers! Amitha...
Any of you interested to get information on the latest therapeutic option in vascular malformations , specially of the KTS type please contact. This is...
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Candra's Birthday Sunday August...
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Aug 14, 2005 5:40 am
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Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday August 15, 2005...
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Aug 15, 2005 2:56 pm
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Hi there. I just joined the group and wanted to first say Thank You for all of you who have taken the time to post messages in this group! I have only read a...
Hi to you Nichole, I'm afraid I can't be much help for you, I am searching for answers too. My son was like your daughter and still is - large for his age -...
Dear Nicole, If your daughter is to large for a infant seat I assume she looks older than 10 months. My son has Sotos so by the time he was around 8 months his...
Hi Angie - Are there any sure indicators of Sotos? Like a feature to look for, if the child doesn't have it, then it's not Sotos? I've had my son tested for...
Hi Lea, My son is diagnosed as Sotos-like by a doctor who is considered an expert on Sotos Syndrome in conjunction with our local geneticist. Sotos Syndrome is...
Wow Pam - you are very generous with information. I will read and think about what you've said. Thank god to hear from someone who has been through similar...
No problem!!! :-) I have been in your shoes. I received a lot of help from people online (the Sotos group) who had been in my shoes and understood what we...
I have been looking for a cause of my son's odd behaviors since the day he was born. My son is now 8 years old and after researching Sotos Syndrome I am...
