Birthday Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Ireland Campbell's...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Sep 16, 2004 5:40 am
419
Happy Birthday Ireland - hope you have a really lovely day. Love Susan and Shannon p.s. what has happened to everyone lately? ... From:...
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday September 20,...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Sep 20, 2004 2:56 pm
421
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday October 18,...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Oct 18, 2004 2:56 pm
422
hello I have a daughter who is 2 years old. she is currently standing tall at just over 100cms tall and weighs around 2 stone 11lb. she has only just turned 2....
Sarah Hi and welcome to the group - it is , as you will have realised, fairly inactive alot of the time. I think you need to ask your ped to do a height...
It has been a while since I last posted but it has been a good day. Although I am very lucky I can stay at home with my children I know many would love to...
your situation sounds alot like mine I had to beg the peds to get my son tested genetically because I was getting tired of being accused of not doing my job...
they were taken at her 1st birthday party. The little girl she is with is actually 1yr older than her. even then lauren was taller than her. the other girl is...
Hi Sarah, Your daughter sounds like she may have a possible overgrowth syndrome. (I am just a parent here mind you!) I would ask the pediatrician for a ...
Hi Pam i added some pictures on Lauren which where taken on her 1st birthday. looking back in her red book, she weighed about 32lb at that time. and was 83cms...
In a message dated 10/24/2004 3:16:19 PM Central Standard Time, djmisdee@... writes: My daughters walking gait isnt right. As i have a neice and nephew...
Hi everyone! My name is Laurie, my hubby Chris and I have 5 great kids - we are from NY. The kids: Andrew almost 16 has SGBS & Duanes syndrome (visually ...
Hi, Just had to tell you that our 4 yr old was near me when I pulled up this group. He saw the handsome young man on the home page and asked if it was...
Laurie HI and welcome to the group. Thanks for sharing your story - I'm in the UK and I remember seeing pics I am sure of your Zak, now I have seen the baby...
your son Zak sounds a lot like my Michael and looks a lot like him you can see his pics in th photos area well anyway I'm not one for a lot of words but good...
I have noticed that most of the sotos kids are tall and very skinny but am scratching my head because my son was labled sotos and is very tall but also very...
The boy in the uk, that was on tv the other week was Archie wasnt it? (The 6 stone baby on channel 5??). Archie has MOMO syndrome. His mum is on a parenting...
Hi, OK - I don't want to scare you.but Sotos can be inherited.have either of the parents been said to have Sotos? Some people don't find out they have Sotos...
Hi, I'm Sher, my 3 kids and myself all have Gorlin Syndrome, and would like to talk to others who have it..never have before..and would like to get some...
Sher hi and welcome to the group:) Not sure there is anyone on the site with Gorlin syndrome but when I was researching the various syndromes, I am sure I came...
Sher have just checked again - there is a support group based in the UK I think which has a contact email address that was updated only about two weeks ago. If...
hi my name is liz tombs, and i have sotos syndrome, and ive had it for the past 27 yrs, and it can some times be a pain in the but, if there are any other...
Hi Liz, Just curious where you are from? We live in the USA, and my son is 5 years old and has Sotos Syndrome. He gets services and funding based on the...
Hi Liz I would definitely recommend you try the other site as there are a couple of mums on there who are very knowledgable about Sotos. However I think the ...
Hi, Everyone, My first name is Jonathon. I'm currently an undergraduate student in Genetics and Molecular Biology. I'm joining this group because I want to...
