Boy, it seems like forever since anyone posted on here,,what is everyone up to? How about a topic question: What plans do you have for your child over the...
Hi Moe I have a dilemma at the moment which might start up some postings!! I know Shannon has special needs and this affects her in quite a number of ways, ...
Hi Susan, I don’t see anything wrong with sending her to some special things like Therapeutic Horseback Riding. My son has been dx’d as Sotos like and has...
you know i would like to have a normal child myself but have been blessed with one that is special needs, he is behind in someways but stronger in others. he...
Susan, This is a tough one. We did, and still do, take advantage of services and activities that might help our son develop physical and social skills, but ...
Hey all, I have been busy, but I thought I would come over and give you an update on my nephew. Well he will be 1 year old shortly and is still behind...
Hi Tam, I would say that dev ped is wrong too!!!! 9 months is the tail end of the normal range for sitting up and he is going to be 1 year old. 1 year old...
Hi Lissa, Wow I cannot believe a parent would ask to have their child NOT be in a room with a particular child!!! I assume there are parents who do not like...
Pam We were out to dinner the other evening and he wasn't able to pick up a waffle fry, let alone a cheerio. Can only "eat" (swallow) small 1/8" size pieces...
A big thank you to everyone who replied to my message about where to send Shannon. I really appreciate all your advice and have taken it all on board. I just...
Hi Tam Whilst it seems obvious that your little nephew has lots of problems, my advice is to not be too sure that it is Sotos. There are lots of overgrowth ...
Thanks Pam, Yes, you are right, it is good for all children to learn empathy, it is just the righteous attitudes from parents that get to me sometimes. Sorry...
Susan Based on the criteria listed, he fits most of the criteria for Soto's. Very tall (over 33" at 9 mo), large head circumference, hypotonia, constipation,...
my son was dx with sotos for 2 years, he fits soto with a t. he however does not have soto syndrome. yes it is very fustrating but we are dealing everyday.. i...
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday May 17, 2004 ...
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May 17, 2004 2:56 pm
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Hi, I just joinded this group and wanted everyone to know a little about myself. I've been a member of the Sotos egroup for sometime and thought I would also...
Hi Angie Welcome to our group. It is small but growing slowly lol:) and has been pretty quiet over the last few weeks. I tend to post also on the Sotos Group...
You put the email addresses for posting to each group in your address book. Then you write a new email, and put both addresses in the To box. Hope that...
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday June 21, 2004 ...
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday July 19, 2004 ...
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Jul 19, 2004 3:00 pm
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Birthday Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Candra's Birthday ...
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Aug 14, 2004 5:41 am
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My son has the same problem with pants he is 3 years old and has a 32 inch waist and stand 46 inches tall, I had a few pairs of pants made by a taylor and I...
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday August 16, 2004...
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Aug 16, 2004 2:59 pm
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Birthday Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Ireland Campbell's...
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Sep 16, 2004 5:40 am
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Happy Birthday Ireland - hope you have a really lovely day. Love Susan and Shannon p.s. what has happened to everyone lately? ... From:...
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday September 20,...
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Sep 20, 2004 2:56 pm
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Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday October 18,...
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