Hi Tam, I knew when the neurologist mentioned Prader Willie and Angleman’s Syndromes that he did not have them. I had already seen read about them on the...
Hi Tam, I forgot to say Kevin did not speak except for a few sporadic words until he was 4 years old. So he had a significant speech delay. He does have...
Tam if you go onto the sotos website, it lists all the features there, or you can go on the canadian site which is in the sotos links bit and that definitely...
Well in looking at the criteria on the SSSAC site, my nephew has a big chunk of the symptoms, of course there are a couple I am not sure about, would really...
Tam, sorry can not help on the length except to say you are right, he is waaaay off the top. It is very difficult to make a judgement even when you are the...
Here's the newest version...I'm told. Copy and paste it into a new document, change to your answers, then send it to friends, and return it to me.. 1.IF YOU...
has anyone heard of him or even been to him? I know he does alot of research on children..this is a doctor whom they will send us to if they can't give us a...
Is anybody out there? Hope you all had a good easter. My question is, is anyone else willing to post photos on the site? As I have said before, in my case,...
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday April 19, 2004 ...
UndiagnosedOvergrowth...
UndiagnosedOvergrowth...
Apr 19, 2004 2:58 pm
388
Hi Miranda I haven't posted Shannon's pictures for two reasons. Firstly, I don't really know how to, although I'm sure I could learn. More importantly, I am ...
Hi susan Oh you both must be feeling shocked today with another dx. No matter how hard you prepare yourself, it still hits you in the solar plexus. Glad you...
Susan: I just read your post, and I chat online with a young lady who has Aspergers and is very active in autism education and awareness. If you want to email...
Hi Moe Thanks for your message and sorry for the delay in replying - just going through a chaotic stage at the moment!! I would be very interested in having...
Boy, it seems like forever since anyone posted on here,,what is everyone up to? How about a topic question: What plans do you have for your child over the...
Hi Moe I have a dilemma at the moment which might start up some postings!! I know Shannon has special needs and this affects her in quite a number of ways, ...
Hi Susan, I don’t see anything wrong with sending her to some special things like Therapeutic Horseback Riding. My son has been dx’d as Sotos like and has...
you know i would like to have a normal child myself but have been blessed with one that is special needs, he is behind in someways but stronger in others. he...
Susan, This is a tough one. We did, and still do, take advantage of services and activities that might help our son develop physical and social skills, but ...
Hey all, I have been busy, but I thought I would come over and give you an update on my nephew. Well he will be 1 year old shortly and is still behind...
Hi Tam, I would say that dev ped is wrong too!!!! 9 months is the tail end of the normal range for sitting up and he is going to be 1 year old. 1 year old...
Hi Lissa, Wow I cannot believe a parent would ask to have their child NOT be in a room with a particular child!!! I assume there are parents who do not like...
Pam We were out to dinner the other evening and he wasn't able to pick up a waffle fry, let alone a cheerio. Can only "eat" (swallow) small 1/8" size pieces...
A big thank you to everyone who replied to my message about where to send Shannon. I really appreciate all your advice and have taken it all on board. I just...
Hi Tam Whilst it seems obvious that your little nephew has lots of problems, my advice is to not be too sure that it is Sotos. There are lots of overgrowth ...
Thanks Pam, Yes, you are right, it is good for all children to learn empathy, it is just the righteous attitudes from parents that get to me sometimes. Sorry...
Susan Based on the criteria listed, he fits most of the criteria for Soto's. Very tall (over 33" at 9 mo), large head circumference, hypotonia, constipation,...
my son was dx with sotos for 2 years, he fits soto with a t. he however does not have soto syndrome. yes it is very fustrating but we are dealing everyday.. i...
Reminder from the Calendar of UndiagnosedOvergrowthSyndromes http://groups.yahoo.com/group/UndiagnosedOvergrowthSyndromes/cal Group Chat Monday May 17, 2004 ...
