Dear Miranda I found Finn's history really interesting. Shannon has not had the medical problems which he has, but other similarities are uncanny: Born 4...
Thanks, Pam We saw Dr Schaefer when Aaron Max was eight. He looked at the MRI and said it was negative for Sotos, Sotos like, brain injury, oxygen deprivation ...
Hi Susan Dr Cole is a recognised authority on Sotos Syndrome (along with Dr Schaeffer in the States and one other dr in the States) He is Birmingham Women's...
Alissa sorry to butt in here. I just wanted to ask a couple of questions. Do you think Aaron Max has the facial gestalt of Sotos? Does he have the large head...
Jeremy's pic is now on the homepage cover. Come see! BTW, he looks so much like Ireland (Sotos)! He must be a little older, though, as he has thicker hair! ...
jeremy in that pic is 1 years old, he is now 3 1/2 years old. i couldn't find the disk that has current pics, as soon as i do i will get them up. thank you for...
Dear Miranda Wow, you must have worked hard to get five hours help a day for Finn. How did you get it and who pays for it, his school or the LEA? Shannon has...
Dear Susan I have no time to go into an in-depth reply at the moment so sorry, but something you have mentioned in you mail alerts me. Are you getting help...
Jan he is beautiful. I know that is not a politically correct term to use for one of the male persuasion, but I call it like it is. A beauty. Patricia ... will...
Alpha this is not Miranda but Patricia I am in this group the Soto group and also undiagnosed syndromes@yahoogroups.com I refer more to these two groups as my...
Dear Miranda, Please don't apologize. Ask or say whatever you like, I won't mind. I will post some early pictures of Aaron Max (I'm adding the Max because...
Hi all I have finally added some photo's of Heath to "Undiagnosed At This Time" photo folder. A little history... Heath is currently 6. His development was...
Oh my God, you could be describing Finn mostly! Except I think he is further behind than Heath (although Finn is not yet 5 1/2 so it is difficult to compare i...
Hi Karen All Heath's problems apply perfectly to Shannon too. His photos are lovely, his eyes and forehead are very much like hers. She is also 6, wearing...
Hi Miranda It is strange just how much these kids have in common, they are improving so that is always a good sign. Heath has improved dramatically over the...
Hi Susan Thank you, I think the photos are pretty good too :-) I have wondered about Heath's look especially his forehead, eyes and flatish nasal bridge and...
Karen, Heath is a very handsome boy! His features are similar to Aaron Max when he was younger. I'll try to get a photo up. Heath's hands look like Aaron's, ...
Hi Karen Shannon is undiagnosed, but we think she looks like Sotos apart from not having a pointed chin. The geneticist thinks otherwise. I hope you don't...
I need information on that vest thing that is supposed to help with autism. Some one somewhere was talking about it recently. Have a friend asking about it...
Hi Susan I don't mind you asking at all, yes Heath also has thin eyebrows. He has really long eyelashes as well. Something I noticed yesterday, Heath had a...
Hi Alissa, I am Pam...mom to Kevin age 4 Sotos-like (who had a dx of autism by 1 doc and 3 say no) Anyways can you tell me where you heard/read about brain...
Hi Ladies, Kevin age 4.5 is using the toilet independently during the day for urine but BM are another story. He gets constipated at times so it is hard for...
Hi Patricia, It is Pam from the Sotos site. I am assuming you are asking about weighted vests? You can order them from OT catalogs or make them yourself....
Dear Pam, There have been several reports lately in the media about changes in relative sizes of two or three regions of the brain in people with autism. I ...
Hi Alissa, Now that you mention it I do recall reading some new studies about brain changes, but I don't think most doctors or radiologists would have a clue...
Hi everyone, Sarah has asked me to help moderate the site. My job is to delete messages that don't need to be permanently stored in the archives - ie thank you...
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