Hey Maxine,
I don't know if you ever found out with your sons issues with touch
of water and so forth may have been, but I thought I would mention
Sensory Integration Disorder (I have a friend whos son has this..and
the circumstances sound similar). Hope this helps!
Sincerely,
Benita Greene
--- In UndiagnosedOvergrowthSyndromes@yahoogroups.com, "mxnpowis"
<mxnpowis@...> wrote:
>
> hi everyone, i thought id let you all know the latest on my son
> michael,some of you might remember him from when i was on line a
long
> time ago!michael is now two and a half,he will be 3 in september,we
are
> waiting for some gene test results but do not know what hes being
> tested for this time as last time i sent myself crazy looking on
the
> web for the syndrome ,i went crazy with worry,so they are keeping
me in
> the dark unless its positive! michael is 105 in height,23kg in
weight
> and very strong!! he has very delayed speech and the difficulties
that
> go hand in hand with that ,he has severe reflux which we still cant
> manage so as a last result he might have an operation but i dont
really
> know much about it yet,the docs just mentioned its a last
> result .michaels a lovely little boy but very hard work ,he has
> behaviour issues and issues with the feel of certain
substances,like
> water ,wet things etc etc does anyone have any insight to these
> things ? someone elses insight might help me to understand them and
> deal with them in a better way,i get so frustrated ,every day is so
> differant from the day before if that makes any sense! thanks for
> listening ,maxine uk
>