Hi Cheryl,
My name is Benita Greene, I live in NC (US), our daughter Bella is 9
1/2 months and has Beckwith-Wiedemann Syndrome. Welcome, if I can be
of any help or you have any questions, just let me know!
Sincerely,
Benita

--- In UndiagnosedOvergrowthSyndromes@yahoogroups.com, "mxnpowis"
<mxnpowis@...> wrote:
>
> --- In UndiagnosedOvergrowthSyndromes@yahoogroups.com, "cherylt25"
> <triplettcl@> wrote:
> >
> > Hi, I just joined this group. My daughter is 9 years old,and has
> been
> > suspected of having an overgrowth syndrome for quite some time.
She
> > is around 100 lbs, is very tall, has macrocephaly, severe MR,
> > hypotonic cerebral palsy, and seizures. She doesn't have sotos,
but
> > has had numerous testing done to try to figure out what she has,
and
> > everything comes back normal. Hope to learn a lot here! Cheryl
MN
> >
> hi cheryl,unfotunately this site isnt very active,i myself am
guilty of
> only coming on here very occasionally,welcome and best wishes to
you
> and your family,maxine uk
>