Hey Krystal,
You may also want to look at chromodisorder.org for help..hope this
helps!
Benita
Mom to Bella 9 1/2 months (beckwith-wiedemann syndrome), Ciaira 13
--- In
UndiagnosedOvergrowthSyndromes@yahoogroups.com, "mental_krystal"
<lovingmentalmama@...> wrote:
>
> Liam & Rowan are affected by BRRS (Bannayan-Riley-Ruvalcaba Syndrome).
> Aidan is unaffected.
>
> I go back in May to discuss what the future holds for us now. I've
> sent in the application for Easter Seal for diaper funding, & working
> on the stroller aspect.
>
> ... wondering where the road leads from here
>
> Krystal
>
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