--- In UndiagnosedOvergrowthSyndromes@yahoogroups.com, "cherylt25"
<triplettcl@...> wrote:
>
> Hi, I just joined this group. My daughter is 9 years old,and has
been
> suspected of having an overgrowth syndrome for quite some time. She
> is around 100 lbs, is very tall, has macrocephaly, severe MR,
> hypotonic cerebral palsy, and seizures. She doesn't have sotos, but
> has had numerous testing done to try to figure out what she has, and
> everything comes back normal. Hope to learn a lot here! Cheryl MN
>
hi cheryl,unfotunately this site isnt very active,i myself am guilty of
only coming on here very occasionally,welcome and best wishes to you
and your family,maxine uk