Hi, I just joined this group. My daughter is 9 years old,and has been
suspected of having an overgrowth syndrome for quite some time. She
is around 100 lbs, is very tall, has macrocephaly, severe MR,
hypotonic cerebral palsy, and seizures. She doesn't have sotos, but
has had numerous testing done to try to figure out what she has, and
everything comes back normal. Hope to learn a lot here! Cheryl MN