THANK YOU FOR CHOOSING TO JOIN US!
I HOPE THIS SITE HELPS YOU TREMENDOUSLY.
PLEASE TAKE A MOMENT TO LOOK OVER THE SITE.
THERE ARE SOME VERY USEFUL LINKS AND FILES.
ALSO THERE ARE PHOTOS OF SOME PEOPLE WITH SOME OF
THE SYNDROMES DISCUSSED HERE.
PLEASE ADD YOUR OWN TO THESE SO THAT ANYONE WHO
MAY RECOGNIZE YOUR/YOUR CHILD'S SYNDROME CAN BE
OF ASSISTANCE TO YOU.
ALSO PLEASE TAKE A MOMENT TO ANSWER OUR POLLS
AND VIEW THE RESULTS.

EVERY GOOD SITE MUST HAVE A FEW GUIDELINES,
SO HERE OUR SOME OF OURS:
1) PLEASE BE RESPECTFUL OF OTHER'S FEELINGS WHEN POSTING.
WE DON'T HAVE TO BE SUPER POLITICALLY CORRECT,
BUT IF SOMETHING BLATANTLY HURTFUL IS POSTED,
THE POSTING WILL BE DELETED AND THE POSTER WILL BE WARNED OR BANNED,
DEPENDING ON SEVERITY.
2) PLEASE DO NOT ADD LINKS UNLESS THEY ARE RELATED TO SYNDROMES,
HELP ORGANIZATIONS FOR SYNDROMES, OR YOUR PERSONAL PAGES.
NO LINKS FOR DATING SERVICES, CREDIT CARD SERVICES, ETC,
WILL BE ALLOWED TO REMAIN, AND THE POSTER OF SUCH LINKS WILL BE
REMOVED FROM THE SITE AND POSSIBLY BANNED.
3) PLEASE ADD FILES ONLY IF THEY ARE IN GOOD TASTE AND RELATED TO
THE MISSION OF THIS SITE. OFF-TOPIC POSTS WILL BE REMOVED.
4) PHOTOS YOU ADD SHOULD BE IN GOOD TASTE.
DO NOT ADD PHOTOS OF PEOPLE UNRELATED TO YOU WITHOUT THEIR PERMISSION.
PHOTOS SHOULD BE PLACED IN THE APPROPRIATE FOLDERS.
IF YOU WOULD LIKE TO ADD YOUR OWN SUB-FOLDER, THAT IS FINE.
5) FOR SPACE SAKE, IF YOU BEGIN A PERSONAL CONVERSATION WITH ANOTHER
MEMBER THAT BECOMES A PRIVATE EXCHANGE MEANT SOLELY FOR THAT PERSON,
PLEASE SEND THE EMAIL DIRECTLY TO THEM AND DO NOT POST IT AS A GROUP
MESSAGE.
YOU CAN DO THIS BY CLICKING ON THEIR USER NAME INSTEAD OF REPLY.
OR IF YOU DO CLICK ON REPLY, YOU CAN GO TO WHERE IT SAYS "SEND TO" AND
CLICK TO CHANGE IT FROM THE GROUPS ADDRESS TO THE MESSAGE POSTER'S ADDRESS.
IF YOU ARE JUST SAYING THANK YOU, FOR INSTANCE, OR IN ANY WAY SPEAKING
DIRECTLY TO ONE SPECIFIC PERSON, PLEASE ONLY SEND THAT EMAIL TO THAT
PERSON.
AN EXAMPLE WOULD BE IF YOU FEEL THE NEED TO CHANGE THE SUBJECT TO READ
"TO SUCHANDSUCH", THAT IS A GOOD INDICATOR THAT THIS MESSAGE IS NOT FOR
THE GROUP AND SHOULD NOT BE SENT TO THE ENTIRE GROUP.
6) WHEN RESPONDING TO A MESSAGE, PLEASE DELETE ALL OF THE ORIGINAL
MESSAGE EXCEPT THE PART THAT SPECIFICALLY RELATES TO YOUR REPLY.
WHEN PEOPLE TO CHOOSE TO RECIEVE THE DIGEST,
THEY SOMETIMES GET THE SAME MESSAGE OVER AND OVER AGAIN AS
THE ORIGINAL MESSAGE AND AS PART OF
EACH REPLY TO THAT MESSAGE.
KEEPING ONLY THE PART OF THE ORIGINAL MESSAGE THAT IS ESSENTIAL WILL
MAKE READING THE DIGEST MUCH EASIER.
7) EMAIL PREFERENCES ON THIS MESSAGE BOARD MUST BE SET AT A MINIMUM OF "SPECIAL
NOTICES".
ANYONE WHO JOINS AND CHOOSES "NO EMAIL" WILL BE CHANGED BY THE MODERATOR
TO RECIEVE SPECIAL NOTICES.
HOPEFULLY THIS WILL HELP KEEP SPAMMERS OFF OF OUR MESSAGE SITE.
I ALMOST NEVER SEND THESE SPECIAL NOTICES, BUT IF I DO AND THEY BOUNCE,
THE MEMBER MAY BE REMOVED FROM THE SITE, UNLESS I KNOW WHO THEY ARE AND
THAT THEY ARE SINCERE MEMBERS.
8) HOPEFULLY THAT IS ALL, BUT THIS FILE MAY BE UPDATED AS NECCESSARY.
PLEASE ENJOY THE SITE, AND WELCOME TO THE COMMUNITY!
SARAH,
MODERATOR