hi everyone, i thought id let you all know the latest on my son
michael,some of you might remember him from when i was on line a long
time ago!michael is now two and a half,he will be 3 in september,we are
waiting for some gene test results but do not know what hes being
tested for this time as last time i sent myself crazy looking on the
web for the syndrome ,i went crazy with worry,so they are keeping me in
the dark unless its positive! michael is 105 in height,23kg in weight
and very strong!! he has very delayed speech and the difficulties that
go hand in hand with that ,he has severe reflux which we still cant
manage so as a last result he might have an operation but i dont really
know much about it yet,the docs just mentioned its a last
result .michaels a lovely little boy but very hard work ,he has
behaviour issues and issues with the feel of certain substances,like
water ,wet things etc etc does anyone have any insight to these
things ? someone elses insight might help me to understand them and
deal with them in a better way,i get so frustrated ,every day is so
differant from the day before if that makes any sense! thanks for
listening ,maxine uk