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UndiagnosedOvergrowthSyndromes · Undiagnosed Overgrowth Syndromes
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Reply | Forward Message #644 of 809 |
Liam & Rowan are affected by BRRS (Bannayan-Riley-Ruvalcaba Syndrome).
Aidan is unaffected.

I go back in May to discuss what the future holds for us now. I've
sent in the application for Easter Seal for diaper funding, & working
on the stroller aspect.

... wondering where the road leads from here

Krystal




Sat Apr 21, 2007 6:54 pm

mental_krystal
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Message #644 of 809 |
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Liam & Rowan are affected by BRRS (Bannayan-Riley-Ruvalcaba Syndrome). Aidan is unaffected. I go back in May to discuss what the future holds for us now. I've...
mental_krystal
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Apr 21, 2007
6:55 pm

Hey Krystal, You may also want to look at chromodisorder.org for help..hope this helps! Benita Mom to Bella 9 1/2 months (beckwith-wiedemann syndrome), Ciaira...
Coy and Benita
coyandbenita
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Jan 11, 2008
4:14 am
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