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Hi Krystal
I was really interested to see your lovely photos. Your pictures, from the eyes upwards, of Liam, and of Rowan when younger (but not the latest one) are the nearest in looks to my daughter Shannon who is 9, that I have ever seen. Do you mind me asking if your boys have foreheads that have a sort of "shelf" at the top by the hairline? When Shannon was younger, her forehead stuck out further than her nose, but over the years it has become flatter, yet there is still a ridge at the top. The best way I can describe it is that if I put my cupped hand over my head at the hairline, it fits neatly over my head, but if I do this on her I can feel the bone at the top of her skull sticking out into my hand.
Shannon also shows every one of the individual features of Sotos, but she tested negative. I could never understand this, but when I went to the UK conference and saw Sotos children, I then realised that whilst having all the individual features, she does not have the "overall Sotos look", and it struck me that the same can be said of your sons too.
Susan UK
----- Original Message -----
From: mental_krystalSent: Friday, February 02, 2007 2:11 AMSubject: [UndiagnosedOvergrowthSyndromes] posted picsI posted a few more pictures of Rowan & Liam if anyone would like to
take a look
Krystal
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