Hello,

My son drooled until he was about 4. He is still undiagnosed. I’m familiar with Sotos because he has similar issues. There used to be an awesome website on drooling, but I think they took it off a couple of years ago. They mentioned that it could be an imbalance of some neurotransmitters, caused by immune system overload, possibly due to food allergies. It seemed to fit our cause at the time because that was when we started the gluten & casein free diet for autistic symptoms. His drooling stopped then. Who knows? Maybe it would have stopped anyway. Of course there is also the theory of low muscle tone and sensory (knowing that it’s time to swallow) that can cause it too. Every so often now he still almost drools or dribbles, but is good at catching himself. Maybe it’s just a normal 11 year old boy thing anyway.

Julie

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From: UndiagnosedOvergrowthSyndromes@yahoogroups.com [mailto:UndiagnosedOvergrowthSyndromes@yahoogroups.com] On Behalf Of Sarah Kelley
Sent: Tuesday, January 23, 2007 9:44 PM
To: UndiagnosedOvergrowthSyndromes@yahoogroups.com
Subject: [UndiagnosedOvergrowthSyndromes] Re:Aloha from Hawaii

I'm sorry but it doesn't sound like my 4 year old, who does have Sotos.  The main differences are that my child stopped excessive drooling at around 2 or early 3's and there is no way she could learn to read yet.  She does say her abc's sometimes, but sometimes gets confused with them.

It sounds like your child is similar to Sotos, but the best way to rule out or confirm Sotos is to have the NSD1 gene test.  Some people will tell you it isn't accurate, but the Dr.'s who wrote the book on Sotos so to speak both agree that the test is almost positively accurate. 

Sarah

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