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Aloha from Hawaii   Message List  
Reply | Forward Message #616 of 807 |
Re:Aloha from Hawaii

I'm sorry but it doesn't sound like my 4 year old, who does have Sotos.  The main differences are that my child stopped excessive drooling at around 2 or early 3's and there is no way she could learn to read yet.  She does say her abc's sometimes, but sometimes gets confused with them.
It sounds like your child is similar to Sotos, but the best way to rule out or confirm Sotos is to have the NSD1 gene test.  Some people will tell you it isn't accurate, but the Dr.'s who wrote the book on Sotos so to speak both agree that the test is almost positively accurate. 
Sarah
 


Wed Jan 24, 2007 3:43 am

waytoopoorto...
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Message #616 of 807 |
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I have not yet had my son diagnosed for Sotos, but have been quietly investigating this syndrome. My son will be 4 soon and continues to drool excessively....
wahine_eleu
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Jan 22, 2007
8:52 pm

I'm sorry but it doesn't sound like my 4 year old, who does have Sotos. The main differences are that my child stopped excessive drooling at around 2 or early...
Sarah Kelley
waytoopoorto...
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Jan 24, 2007
3:48 am

Hello, My son drooled until he was about 4. He is still undiagnosed. I'm familiar with Sotos because he has similar issues. There used to be an awesome website...
Julie Younger
juliey78620
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Jan 25, 2007
2:22 pm

hi julie, thank you for your response. could you tell me more about the gluten and casein free diet? thanks, Wahine Julie Younger <jyounger@...> wrote: ...
Aloha Hawaii
wahine_eleu
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Jan 29, 2007
2:51 am
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