Hi. I joined this group because my son Michael has an as of yet
undiagnosed overgrowth syndrome. The neurologist mentioned Sotos
syndrome and he has a lot of the symptoms. He is due to see the
geneticist in a month to find out for sure. Does anyone know how they
diagnose this? I have noticed that my son looks an awful lot like some
of the kids who have been diagnosed as being "Sotos-like". What
exactly does that mean? Could this possibly be a syndrome that hasn't
been discovered yet? If anyone could give me any advice, I would be
very grateful. I would like to go in to the geneticist's office with
as much information as possible. Thanks. :)