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Reply | Forward Message #602 of 809 |
RE: [UndiagnosedOvergrowthSyndromes] New here - To Maria

Hi Maria,

This is Pam again…you may want to post this to the Sotos site as well.  Sometimes there are others who lurk b/c the syndromes have similar characteristics AND the Sotos site is for “overgrowth syndromes” not just Sotos anymore!  This site is not very active unfortunately, but you never know you may find someone on here who knows about it. 

Take care!  Write or call me when you have time!

Pam J  

 

 

-----Original Message-----
From: UndiagnosedOvergrowthSyndromes@yahoogroups.com [mailto:UndiagnosedOvergrowthSyndromes@yahoogroups.com] On Behalf Of mariaandliam
Sent: Saturday, October 28, 2006 2:16 PM
To: UndiagnosedOvergrowthSyndromes@yahoogroups.com
Subject: [UndiagnosedOvergrowthSyndromes] New here

 

Hello!

My name is Maria and I have a son Liam who is 27 months old. A while
ago I was a "lurking" member of the Sotos Group as I was suspecting
that my son might have it. Well he ends up having Bannayan Zonana
Syndrome. We just found out about this through a PTEN gene test.
Anyone else here with a child with this Syndrome?

Thanks so much!
Maria
Sun Oct 29, 2006 2:56 pm

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kevsmom72699
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Forward 		Message #602 of 809 |
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Hello! My name is Maria and I have a son Liam who is 27 months old. A while ago I was a "lurking" member of the Sotos Group as I was suspecting that my son... 		mariaandliam
Offline Send Email 		Oct 28, 2006
7:19 pm

Hi Maria, This is Pam again.you may want to post this to the Sotos site as well. Sometimes there are others who lurk b/c the syndromes have similar ...
Pam
kevsmom72699
Offline Send Email 		Oct 29, 2006
3:01 pm

Hi Maria sorry I dont post often here, but just wondered have they said that the other name for Bannayan Zonana could be Bannayan Riley Ruvalcaba syndrome? Not...
finnedward98
Offline Send Email 		Jan 26, 2007
8:55 am
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