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Reply | Forward Message #601 of 809 |
Hello!

My name is Maria and I have a son Liam who is 27 months old. A while
ago I was a "lurking" member of the Sotos Group as I was suspecting
that my son might have it. Well he ends up having Bannayan Zonana
Syndrome. We just found out about this through a PTEN gene test.
Anyone else here with a child with this Syndrome?

Thanks so much!
Maria





Sat Oct 28, 2006 7:16 pm

mariaandliam
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Message #601 of 809 |
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Hello! My name is Maria and I have a son Liam who is 27 months old. A while ago I was a "lurking" member of the Sotos Group as I was suspecting that my son...
mariaandliam
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Oct 28, 2006
7:19 pm

Hi Maria, This is Pam again.you may want to post this to the Sotos site as well. Sometimes there are others who lurk b/c the syndromes have similar ...
Pam
kevsmom72699
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Oct 29, 2006
3:01 pm

Hi Maria sorry I dont post often here, but just wondered have they said that the other name for Bannayan Zonana could be Bannayan Riley Ruvalcaba syndrome? Not...
finnedward98
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Jan 26, 2007
8:55 am
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