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Hi Demetria
I am sorry I cannot help you as I don't know anything about your son's syndromes. Have you searched the internet to see if there are any support groups for his particular problems. Most syndromes seem to have a support group these days, but sometimes they are hard to track down.
It must be such a worry for you because of the possible outcome, and I know that any support you can find will help you. Good luck in your search, but you are of course still welcome to post on here, whether or not you find support elsewhere.
Susan UK
----- Original Message -----From: Demetria JonesSent: Saturday, July 15, 2006 2:45 AMSubject: [UndiagnosedOvergrowthSyndromes] what are the symptomsmy son has gorlin syndrome he is 8yrs old. he is very large for his
age. he also has digeorge syndrome. he has alot of headaches he also
has some tumors on his tongue and some on his face. they are not caner
yet. his dad has it and his brother from his dad has it. his brother
had brain cancer from it and survived. but with my son as far as i
been told is that i just have to wait until a cancer tomor form
somewhere in his body. i still dont know awhole lot about it because
it is so rare. he also has crohns disease in his right foot which was
a club foot. he has a 9 1/2 in mens foot on his left and a 6 1/2 foot
on the right. if anyone know anything about this syndrome please let
me know and what i should expect to happen to my son.
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