hi, are you in toch with the genetists? have they done any dna tests? i hope you get some answers,i know how frustrating it can be!! keep us informed,take care maxine uk

baylorsgrammy <baylorsgrammy@...> wrote:

I am the grandmother of a 2 year old little girl that was born with
some sort of overgrowth syndrome.  Noone has been able to diagnose her
yet.  She is of above average intelligence and beautiful.  She has
extremly large feet and legs up to the waist. One leg is larger than
the other.  She does walk rather well.  She also has 3 very
large "vascular" tumors in her stomach.  The Dr. say's these are
inoperable.  One is the size of a football.  Can anyone tell us wich
direction to go in? 

Baylor's Grammy
sandielee@...

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