Hi Maxine
I'm on this site too!! It used to be really good but then went very quiet.
However there have been a couple of new people posting recently so lets hope
we can get it going again. I think it is so important for all of us without
a definite diagnosis to be able to relate to each other.

Susan UK


----- Original Message -----
From: "mxnpowis" <mxnpowis@...>
To: <UndiagnosedOvergrowthSyndromes@yahoogroups.com>
Sent: Friday, February 10, 2006 8:42 PM
Subject: [UndiagnosedOvergrowthSyndromes] new to group


> hi,i thought id join this group as my son michael has an undiagnosed
> overgrowth syndrome,he was tested 4 sotos but it was negative,michaels
> 18 months old but he started puberty at 8 months, trying to find some
> answers but its so hard!!! i hope to make friends with others in the
> same situation,were going through a hard time right now michael
> suffers from severe reflu and also aspirates fluid into his lungs he
> has so many chest infections because of it its unreal,were fighting
> with the docs to sort it out,but they are useless,they dont even know
> my son!!! sorry ot vent ,just frustrated,hello to you all,mxnpowis,uk
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