My son is very large(both in height and weight). He's 6 1/2 and is
54 inches and weighs 97 pounds, size 7 shoe. IQ is above average,
social skills suffered regression around 4 years of age as did
coordination skills.
The neurologist suspects SOTOS and we will find out the results in a
couple of weeks. He does not look like the kids I've seen with SOTOS
but he looks just like the boy on the front of this website (face
shape, smile, eyes, everything). Does anyone know what type of
overgrowth syndrome this boy has? (He's the boys sitting on a couch
wearing a white t-shirt).
My son is very large(both in height and weight). He's 6 1/2 and is 54 inches and weighs 97 pounds, size 7 shoe. IQ is above average, social skills suffered...
The boy on the front is undiagnosed also. But please hang around and keep posting here. Maybe answers will be on the way for you. Sarah (Mom of IReland...
hi susan miranda and everyone else.i finally got to talk to dr cole last night,we had agood chat for about 20 minutes,i was so glad he rang me back,i kept...
Hi Maxine No wonder you are feeling confused, having a child who is large for his age now, but could be small in the end. I suppose its because children stop...
oh susan,how i can relate to how you feel!! sometimes i feel im in a daze,and yes ,nay spare time is spent on here ,reading anything i can lay my hands on,...
Hi Maxine Well done to Michael for learning to walk. I think because our children take longer to achieve, it makes it all that more special and definitely...
hi susan,its good shannon is in mainstream school,but i bet youd like her to have more than 10 hours of support,i expect you had to fight for that! i really...
susan sorry to butt in here, but empathising totally with what you said. Miranda I know how low I get every time a new diagnosis, or confusion over an existing...
Maxine I'm so glad he was helpful. He is a nice man I think and has always got back to me when I've called. I do think he is right in that you need to keep...
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