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Hi to you Nichole,
I'm afraid I can't be much help for you, I am searching for answers too. My son was like your daughter and still is - large for his age - ***everyone*** gets a surprise and comments on how tall he is. He is getting sick of this. So am I!
My son has been diagnosed with autism, but he doesn't quite fit the diagnosis in some ways. I'm still wondering about Alex's diagnosis. He's 5 and a half next week and now he's 4 foot 4 inches (132 cms). Can this be OK?? How are his bones coping with this, calcium wise etc?? He just doesn't stop growing and I am worried about it!
Hugs to you Nichole and I hope you find some answers.
Kind regards,
Lea
----- Original Message -----From: alexsma1Sent: Monday, August 29, 2005 4:12 PMSubject: [UndiagnosedOvergrowthSyndromes] Please Help!Hi there. I just joined the group and wanted to first say
Thank You for all of you who have taken the time to post
messages in this group! I have only read a few of the entries
and it is really helping me understand this Syndrome.
My daughter (10months old) is being tested for Sotos Syndrome.
The FISH test has came back normal but they are checking for mis-
sequencing of the DNA now...which I suppose will determine if it is
Sotos or not. She has had every test under the sun since she was
born.
My quesion is this......She is only 10 months old but she has out
grown her infant carseat. The laws here in Illinois state that a
child under the age of 1 year old and/or wights 20 pounds has to
be in a rearfacing carseat. My problem is, her feet are cramped
and usually on the back of the seat due to her height. This cannot
be safe! Does anybody know what I should do or who should I talk
to about this? I have often wondered if I should call my local
police department.
Please help! We have already bought a new and bigger carseat but
she just grew out of it 2 months later!
Thanks so much,
Nichole
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