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Wondering what testing should be done?   Message List  
Reply | Forward Message #467 of 809 |
Re: [UndiagnosedOvergrowthSyndromes] Wondering what testing should be done?

Hi Donna
Autism and Asperger Syndrome can both be features of various Overgrowth
Syndromes. Your son's height and head size could also be features of this
too. Other indicators are poor muscle tone, problems with fine and gross
motor skills, drooling, delayed speech and late milstones. If he shows any
of these, then I would recommend you seek a second opinion from a
paediatrician.

The most well known Overgrowth Syndrome seems to be Sotos Syndrome and there
is a very active site for this on a yahoo group called sotosyndrome. This
group covers all Overgrowths and members share loads of advice.

Susan
----- Original Message -----
From: "donnaleapau" <leap@...>
To: <UndiagnosedOvergrowthSyndromes@yahoogroups.com>
Sent: Friday, May 27, 2005 3:27 PM
Subject: [UndiagnosedOvergrowthSyndromes] Wondering what testing should be
done?


> My 5 year old son has been diagnosed with autism/asperger's
> recently, because of his behaviours and speech. He has fast mood
> changes, and lashing out snarling type of thing when he's
> stressed/overloaded?
> However, my feeling is there is something else to be revealed, I'm
> not sure exactly what.
> He has been above the 100% band for height since birth, and now at 5
> he was 128cms (50.5 inches). He turned 5 less than 3 months ago and
> he's grown to 136 cms (53.5 inches) in height in less than 3 months.
> He's been growing at these sort of rates all his life.
> He is very verbal, but sometimes it is hard to understand his words.
> He attends a school for Autism, where he's doing very well, and I
> know there's a smart little boy in there (when he can stop long
> enough to think). That's the other big thing the hyperactivity. He
> tells me it's awful when he's tired and he just can't stop his body.
> His head is a little big for his body, he has normal looking ears, a
> slight turn inward of his left eye and has glasses for myopia.
> The only other person in my family that grew very tall is my cousin,
> and she has been in and out of psych clinics, even though she's an
> academic in the music field.
>
> Could someone who has experience with going through this help me
> with the possible conditions fit these symptoms?
>
> With much thanks,
> Donna.
>
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> Yahoo! Groups Links
>
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Fri May 27, 2005 5:54 pm

shannick145
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Message #467 of 809 |
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My 5 year old son has been diagnosed with autism/asperger's recently, because of his behaviours and speech. He has fast mood changes, and lashing out snarling...
donnaleapau
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May 27, 2005
2:27 pm

Hi Donna Autism and Asperger Syndrome can both be features of various Overgrowth Syndromes. Your son's height and head size could also be features of this ...
susan smith
shannick145
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May 27, 2005
5:54 pm

Hi again - That second number is WRONG - it should be he's grown 1 cm to 129cms (51 inched) in the last 3 months. Donna. ... From: donnaleapau To:...
dlp
donnaleapau
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May 28, 2005
1:23 am
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