Hi!

I just wanted to let other parents, whose babies have Sotos syndrome
like symptoms but no diagnosis, know about this functional
neurological syndrome: the kinematic imbalances due to suboccipital
strain (KISS).

It is not genetic and you might start by having the baby evaluated by
a physical therapist and having X-rays of the neck evaluated. It is
not about overgrowth but other developmental difficulties that seem to
match Sotos syndrome.

Most of the information is available in German.

Taina


The information below is from the article:

Biedermann
Manual Therapy in Children
Journal of Manipulative and Physiological Therapeutics
Volume 28, Number

Submit requests for reprints to: Heiner Biederman, MD, Victor-
Jacobslei 18, B-2600 Antwerpen (e-mail: hbie@...).


Relevant questions that contribute to a KISS score

Delivery

Duration of delivery (b1; 1-3; 3-6; N6 h)
Oblique presentation at birth
Twin
Forceps or vacuum delivery
Cesarean delivery

The first months

Bad sleeper during first months, 6 to 12 months, or later
Did/does the child often wake up at night
Crying at night—how often
Fixed sleeping pattern
Problems with breast-feeding on one side
Signs of colic
Orofacial hypotonus
Hypersensitivity of the neck region

General health

Headaches
Mouth is often open

Sensorimotor development slower than expected

Posture and movement
Language
Concentration
Social integration

Asymmetry

Visible immediately after birth or later
Looks only to one side
Moves only one arm/leg
Face is smaller on one side
Back of the head flat on one side
Has a bald spot on the back of the head