Hi Liz

I would definitely recommend you try the other site as there are a couple of
mums on there who are very knowledgable about Sotos. However I think the
spelling has 2 "s" in the middle - sotossyndrome@yahoogroups.com

Would you mind me asking you a personal question as I only know of children
with overgrowth, not adults? How tall are you and when did you stop
growing?

Best wishes, Susan


----- Original Message -----
From: "liztombs" <liztombs@...>
To: <UndiagnosedOvergrowthSyndromes@yahoogroups.com>
Sent: Monday, January 03, 2005 5:32 PM
Subject: [UndiagnosedOvergrowthSyndromes] i have sotos syndrome


>
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> hi my name is liz tombs, and i have sotos syndrome, and ive had it for the
> past 27 yrs,
> and it can some times be a pain in the but,
> if there are any other people on this page who have this syndrome,
> one thing is that slightly anoys me is that this syndrome isnt classed as
> a recognised
> syndrome or disability,
> and i was wondering if it is classed as a disability,
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> Yahoo! Groups Links
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