Hi sarah
yes the child was Archie - someone just told me today and that it is
MOMO.
Welcome to the group too:)
Miranda--- In UndiagnosedOvergrowthSyndromes@yahoogroups.com, "Sarah"
<djmisdee@h...> wrote:
>
> The boy in the uk, that was on tv the other week was Archie wasnt
> it? (The 6 stone baby on channel 5??). Archie has MOMO syndrome.
His
> mum is on a parenting board i use, i might contatc her and redirect
> her here.
> sarah
>
>
>
> --- In
> UndiagnosedOvergrowthSyndromes@yahoogroups.com, "finnedward1998"
> <miranda.bury@v...> wrote:
> >
> > Laurie HI and welcome to the group.
> > Thanks for sharing your story - I'm in the UK and I remember
> seeing
> > pics I am sure of your Zak, now I have seen the baby pic again,
> but
> > that was before we had a child with o'growth and only now that
you
> > have posted have I remembered them.
> > Apparently there was a program on tv here last week about a baby
> with
> > o'growth , but I missed it but from the messages I have got it
> sounds
> > as though the child has SGBS as well but dont know.
> > Hope you have found some support from meeting other in a similar
> > situation though through your efforts to get to the bottom of the
> > issues.
> > Our little boy is 6 and is undiagnosed at the moment, with
> overgrowth
> > syndrome, sotos-like. Dont know if they will ever get to the
> issue
> > with him, but keep hoping they will find a child who look similar
> and
> > has similar medical issues, but until then we wait it out taking
> one
> > day at a time. WE have been told it is definitely not SGBS or
> > Beckwith's so we wait and see.
> > Kind regards
> > Miranda