your son Zak sounds a lot like my Michael and looks a lot like him
you can see his pics in th photos area well anyway I'm not one for a
lot of words but good to have you on board I too have been accused of
overfeeding my son who often times eats less than his father who only
weighs 125 lbs and is nothing but skin and bones I know compairing a
child to a full grown man is sensless but my husband probably eats
less than an infant my youngest son is also high on the precentile at
95 to 97 % in both height and weight
--- In
UndiagnosedOvergrowthSyndromes@yahoogroups.com, "finnedward1998"
<miranda.bury@v...> wrote:
>
> Laurie HI and welcome to the group.
> Thanks for sharing your story - I'm in the UK and I remember seeing
> pics I am sure of your Zak, now I have seen the baby pic again, but
> that was before we had a child with o'growth and only now that you
> have posted have I remembered them.
> Apparently there was a program on tv here last week about a baby
with
> o'growth , but I missed it but from the messages I have got it
sounds
> as though the child has SGBS as well but dont know.
> Hope you have found some support from meeting other in a similar
> situation though through your efforts to get to the bottom of the
> issues.
> Our little boy is 6 and is undiagnosed at the moment, with
overgrowth
> syndrome, sotos-like. Dont know if they will ever get to the issue
> with him, but keep hoping they will find a child who look similar
and
> has similar medical issues, but until then we wait it out taking
one
> day at a time. WE have been told it is definitely not SGBS or
> Beckwith's so we wait and see.
> Kind regards
> Miranda