Hi Angie
Welcome to our group. It is small but growing slowly lol:) and has
been pretty quiet over the last few weeks. I tend to post also on the
Sotos Group (my son has sotos-like dx and is 5 nearly 6 now), but
think I will post here simultaneously if I can ever figure out how to
do it:)
Look forward to hearing how things go with Max- he sounds pretty full
on at the moment. We too had years of heartache and only got finn's
dx last October, but still feel in many ways he is undiagnosed if you
know what I mean, although we know he has an overgrowth disorder.
Take care
Miranda
--- In UndiagnosedOvergrowthSyndromes@yahoogroups.com, "angela"
<awright1136@s...> wrote:
> Hi,
> I just joinded this group and wanted everyone to know a little
about
> myself. I've been a member of the Sotos egroup for sometime and
> thought I would also join this egroup to learn from and maybe help
> some other parents in my position. My son Max is 2yrs and 8 months
> old. He was almost 2 when he was finally diagnosed with Sotos.
> We went through lots and lots of testing and heartache before we
> finally found out. He started walking a month after his 2nd
birthday
> and now he runs everywhere. He still doesnt talk but he can use a
> little sign lang. He justed started feeding himself a month ago and
> unlike my other kids hes not even messy. He is turning into a normal
> wild 2 year old. I look forward to hearing from everyone.
>
> Have a Great Day
> Angie