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I have refractory sprue & lots of complications....   Message List  
Reply | Forward Message #11946 of 12104 |
Re: I have refractory sprue & lots of complications....

Lynne,

I really sympathize and am sorry for all you are going through. I am going
through some complications myself. I have celiac disease and microscopic
colitis. My doctor has me on prednisone, entocort and imuran, and I am tired of
taking all these pills and their nasty side effects. I recently read the book
"Breaking the Vicious Cycle." It recommends the "Specific Carbohydrate Diet"
which is no grains, lactose or sugar. I am going to try it for myself. Here is
the website: http://www.breakingtheviciouscycle.info/index.htm. Maybe something
for you to consider? I hate the thought of more dietary restrictions, but I
just ordered some cookbooks from Amazon and the user reviews really encouraged
me.

I hope you find an answer and get better.

-Lesley





Tue Apr 28, 2009 11:59 pm

shoegirl425
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Message #11946 of 12104 |
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I just got home from the hospital after a week. I went in the 4th. My stomach pain got severe and the bleeding didnt stop either, it had been a month. As soon...
Lynne
momof6incfl
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Apr 25, 2009
8:27 pm

Lynne, sorry to hear of all your trouble! I'm pretty sure that your post just arrived in my inbox an hour or so ago - how weird! I wish I could give you advice...
colinfan1
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Apr 26, 2009
3:29 pm

How do you know you have R. sprue??? I was dx in 2002 and I get cross contaminated every so often.  Have you had a TTG and antibody test. Those test will let...
Diana Kite
deekite
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Apr 26, 2009
3:30 pm

Although I didn't have all the problems you have, I found that I had endometriosis and it had invaded my intestines, causing bleeding, diarrhea, pain, scar...
Diana Dean
nerd2art
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Apr 27, 2009
9:53 pm

Lynne, I really sympathize and am sorry for all you are going through. I am going through some complications myself. I have celiac disease and microscopic...
shoegirl425
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May 3, 2009
6:30 pm
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