Search the web
Sign In
New User? Sign Up
UNdiagnosedMS · UNDiagnosed MS
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
New to this Group - & this is a real post not spam   Message List  
Reply | Forward Message #881 of 1042 |
Re: [UNdiagnosedMS] Re: we are not crazy but try telling the doctors that !!!!!

The only thing is I was taking the medicine just like he perscribed them.  I told him that and he said just because I say it's okay to take that many does'nt mean you have to if you don't need them.  That's where he does'nt understand, I need that many plus some.  No one understands what it is to live with chronic pain unless they have done it themselves.
 
I go back to my new doctor tomorrow.  She has the results to 3 MRI's I had taken last week, and also a chest x-ray.  I'm anxious to find out what she says.  My last MRI's was 2 years ago.  If it is MS I'm sure it has changes because I've gotten alot worse in the last 2 years.   After my appointment with her I am having an EEG test ran.  I've never had one before, so I'm not sure what to expect.  She also talked about getting a medicine pump put in.  I don't have a clue what that is all about.  She said we would talk about that more tomorrow.  She also thinks I may need a self-catheter (?)  I have almost no bladder control at all.  Most of the time when I go to the restroom I'm already wet.  That is so embarassing.  At least the diapers help most of the time.
 
How have you been feeling?  What are your doctors telling you?  Let me know what kind of test and stuff you are going through.  Are you in much pain?
 
Wish me luck at the doctor tomorrow.  Also tell me more about yourself.
 
Thanks,
Carol

K2 <hechobes@...> wrote:

Do be careful, though. You don't want to become tolerant of too high
a dosage because then it may not take the pain away anymore. I've
found that whenever I have prescription stuff, you have to wait so
long between doses that it doesn't do anything for the pain! I went
back to OTC Motrin. At least I can take it every 3 or 4 hours if I
have to. I'm lucky because the antidepressants I'm on seem to take
the pain away for long periods of time. I take it at bedtime, and
usually I am in excruciating pain by then. When I wake up in the
morning, I can take a couple Motrins and I'm "ok" -- not great, but
ok. I was poppin' Motrins like candy for a while there. Now, I
sometimes don't even have to take Motrin every day. My pain bounces
around. One minute it's in my feet, next it's my neck, etc. Is
yours like that too, or is it all in your legs and feet?

K2

>
> My doctor called me at home the other night and chewed me out for
taking to many meds. I told him that if he would give me the proper
amounts for my pain I would'nt have to. He has no clue to how much
pain I am in.





Building a website is a piece of cake.
Yahoo! Small Business gives you all the tools to get online.

Thu Jun 14, 2007 2:24 am

boomersooner...
Offline Offline
Send Email Send Email

Forward
Message #881 of 1042 |
Expand Messages Author Sort by Date

Hi, I call myself K2, and I'm new to this group. I've belonged to numerous other Yahoo groups when I thought I had lupus, lyme, fibromyalgia. I dropped all...
K2
hechobes
Offline Send Email
May 19, 2007
5:49 pm

Hi K2, I'm new to this group also! Have you had your Vitamin B 12 tested? Severe Vitamin B 12 Deficiency can cause a multitude of Central Nervous System...
rn4veterans
Offline Send Email
May 20, 2007
6:27 am

Hi!! I'm glad two of us are new!! How strange, we joined on the same day! Isn't that weird?! Anyway, my B12 was tested at the very beginning and found...
K2
hechobes
Offline Send Email
May 24, 2007
1:43 pm

Here's my story so far: I was diagnosed with Fibromyalgia in 1990. Along with that I have developed extreme heat-sensitivity the last couple of years. I knew...
lorilu4453
Offline Send Email
Jun 7, 2007
6:24 am

Hello Lori and welcome here. I am floored by your story, with the exception of your having been diagnosed with FM (I have not been diagnosed with anything,...
K2
hechobes
Offline Send Email
Jun 8, 2007
10:29 pm

Hi, My name is Carol and I'm 42 yrs. old. I'm really glad someone is back on this sight. I have really missed it. For along time it was all spam and I just...
Carol Riley
boomersooner...
Offline Send Email
Jun 9, 2007
12:13 am

Bored to death? Are you kidding!? I have finally found people who are in the exact predicament as me. I am sorry we're all going through this, but it is...
K2
hechobes
Offline Send Email
Jun 9, 2007
2:07 pm

My doctor called me at home the other night and chewed me out for taking to many meds. I told him that if he would give me the proper amounts for my pain I...
Carol Riley
boomersooner...
Offline Send Email
Jun 10, 2007
4:06 am

Do be careful, though. You don't want to become tolerant of too high a dosage because then it may not take the pain away anymore. I've found that whenever I...
K2
hechobes
Offline Send Email
Jun 13, 2007
1:13 pm

The only thing is I was taking the medicine just like he perscribed them. I told him that and he said just because I say it's okay to take that many does'nt...
Carol Riley
boomersooner...
Offline Send Email
Jun 14, 2007
2:24 am

Hi! Sorry I have been absent for a week. Things have gotten really crazy at work. I used to work 12-hour days 7 days a week (I work for my boyfriend, and...
K2
hechobes
Offline Send Email
Jun 21, 2007
1:56 pm

Hi K2 and Carol. Wow. I thought I had posted a message a few days ago, but something went wrong - probably me !!! I, too have a full-time job. Mine is not...
lorilu4453
Offline Send Email
Jun 23, 2007
3:52 am

Hi K2 and Carol. Wow. I thought I had posted a message a few days ago, but something went wrong - probably me !!! I, too have a full-time job. Mine is not...
lorilu4453
Offline Send Email
Jun 23, 2007
3:54 am

Hi! Another crazy week, and I'm now on vacation! Yay!! So I should be able to be online more now. We just got high-speed satellite installed where I live --...
K2
hechobes
Offline Send Email
Jun 30, 2007
2:46 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help