I think that SSI is based on income & SSDI is not. I
have asked my son's case worker (he is on a Medicaid
waiver for all his problems) & she knew a lot about
what to do. I am going to have my doctor write me up
for SSDI. They will allow for her to request me home
help also I was told so that will be wonderful. I am
not entirely comfortable having someone else do my
work around the house, but I think it is time to get
over that concern. Maybe you could look into that as
well & it might help you a lot also?
Sorry that I haven't written. My husband's car has
been dying for awhile, so I bought him a car he has
been wanting for a long time. Our credit sucks because
my business cost us a fortune since it was closed so
much from being sick & I still had to pay rent even
though I wasn't earning any money, so of course they
robbed us, but he is SO happy that it really is worth
it. Maybe he just needed something special. He works
so hard & I control the money,so he has to ask me
whenever he wants anything. He had a nasty car & all
the other people in exec positions at work drive nice
ones & have expensive watches & clothes. I think he is
embarassed sometimes maybe. He has been so happy.
Maybe it seems superficial, but as hard as he works he
really deserves something that makes him feel like all
the work is for something. I know it is for his family
& so does he & that is why he keeps doing it, but
everyone needs something tangible too. I like to buy
clothes & beauty stuff. He likes cars (mustangs in
particular), so I got him the very best mustang
possible. They didn't want to do the deal because of
the credit. They wanted something cheaper, but I
persisted & I got it for him. And he knows that it is
not something most people could have accomplished so
he is really happy with me. I will take it. I need
that! :) I hope it lasts. Today he took us for a ride
to a city about 50 miles away for a nice dinner
(mostly just so we could drive). He chose that city, I
think, because it is one my son & I love
(Williamsburg, we love historical stuff). He even
fixed the seat in the car so I could get out of it
easier without me even asking him. I didn't know it
could be set higher & it is hard to get up out of a
deep seat because of my incisions. It is so nice to
have him thinking about me again. It hurt my feelings
every time he didn't do something. I just had my
birthday a couple weeks ago & he never even said happy
birthday & I got so upset that I couldn't get my pulse
below 150 all night!
Oh well, I rambled, but I had to share the good news,
there is so little of it these days. I don't care what
this car costs it is worth every penny!! :)
I hope that you are doing better this weekend!
Kat
--- Carol Riley <boomersoonercriley@...> wrote:

> kat, i have'nt got a diagnosis either but i still
> received dissability, and my insurance will start in
> june. so you might look into it cause it would'nt
> hurt. your kids sound alot like mine. and my oldest
> is the same way with her dad. oh, by the way i don't
> know what your husband makes but i don't think it's
> based by income. if your doctor fills you're
> dissabled then that should get the ball rollin. ask
> your doctors about it. have a good evening carol
> riley
>
> Kat <lonelykitykat@...> wrote: yes,
> Lucas (my youngest) is the same way & when my
> other son is around he is the same way. They worry
> about me a lot & try to keep me from doing things.
> The
> older one barely speaks with his dad because he is
> so
> angry at him for how he gets with me for not doing
> things. He can't stand it. Is there a way to get
> help
> somehow around the house & have insurance pay for
> it?
> I am not sure because this is all pretty new to me
> but
> it sure would help. I can't afford to pay someone.
> But
> I am not on SSI because I still don't have a
> complete
> diagnosis (& I dont' think I would qualify anywya
> with
> my husband's income), but I do have very good
> insurance. I guess it depends on the insurance, huh?
> Dumb questions I guess, sorry! :)
> Kat
> --- carol <boomersoonercriley@...> wrote:
>
> > --- In UNdiagnosedMS@yahoogroups.com, Kat
> > <lonelykitykat@...> wrote:
> > >
> > > Sounds like you have a family like mine! :) My
> > sons
> > > try to help, but only one still lives at home
> (the
> > > other is 19 & has a place with his best friend &
> > > fiance) & the other is 15, but has medical
> > problems &
> > > an autistic disorder. So he tries, but just
> isn't
> > very
> > > good at it. He doesn't care much about
> cleanliness
> > > because of the autistic disorder & is sort of
> like
> > a 5
> > > or 6 yr. old in most of his abilities anyway.
> The
> > > older one does what he can, but you know how
> crazy
> > > life is when you are that age so I try not to
> ask
> > too
> > > much from him. He should be enjoying this part
> of
> > his
> > > life & dealt with enough when he lived here. My
> > > husband doesn't clean up at all. He works about
> > 80-90
> > > hours a week to give him credit, but he
> complains
> > > about the mess without ever trying to do
> anything
> > &
> > > that really gets to me. When I do clean up I end
> > up in
> > > bed for a couple of days miserable, so it really
> > > sucks. I can't even take a freaking bath right
> now
> > > because of the surgery & our downstairs bathroom
> > is
> > > now in the dining room because it has been being
> > > renovated for a couple months now. So if I want
> to
> > > clean up I have to do the sponge bath thing.
> > YUCK!! He
> > > put the tub/shower in over a month ago, but
> > somehow
> > > can't manage to finish it so I can get clean!
> > Sorry, I
> > > am just really fed up & I am sick of everything
> > being
> > > on my shoulders. Today I did work a bit on
> picking
> > up
> > > our room. I am tired, but you are right it is
> nice
> > to
> > > have things a bit better. With all the
> renovations
> > > around here the messes like dust, etc pretty
> much
> > have
> > > to just wait because there is too much stuff
> > sitting
> > > around where it doesn't belong to be able to do
> > much.
> > > It is more of a case of straightening the boxes
> of
> > > stuff that get knocked over by my puppies &
> stuff
> > like
> > > that. Nice to get all this off my chest though!!
>
> > > Thanks!
> > > Kat
> > > --- carol <boomersoonercriley@...> wrote:
> > >
> > > > --- In UNdiagnosedMS@yahoogroups.com, Kat
> > > > <lonelykitykat@> wrote:
> > > > >
> > > > > Now they think it is MS because I have nerve
> > > > damage in
> > > > > my legs. I am having a really rough time. I
> > have
> > > > > secondary addison's disease & just had an
> > > > emergency
> > > > > appendectomy last week. I really feel like I
> > am
> > > > going
> > > > > nuts somedays because I am so tired & can't
> > get
> > > > help
> > > > > from anyone at home so my house is trashed.
> > And I
> > > > just
> > > > > want things to get easier for a change!!
> > > > > Thank you for your email. It really helps to
> > talk
> > > > to
> > > > > other people going through similiar things.
> My
> > > > life is
> > > > > really stressful which I think is making
> > > > everything
> > > > > worse, but there isn't really anything I can
> > do
> > > > about
> > > > > it.
> > > > > Take care,
> > > > > Kat
> > > > > --- carol <boomersoonercriley@> wrote:
> > > > >
> > > > > > --- In UNdiagnosedMS@yahoogroups.com,
> > > > > > "lonelykitykat"
> > > > > > <lonelykitykat@> wrote:
> > > > > > >
> > > > > > > Hi, my name is Kathleen. I am 41. I have
> > been
> > > > ill
> > > > > > for 7 months now
> > > > > > > with no relief. I got bronchitis in May.
> > And
> > > > broke
> > > > > > 2 ribs coughing.
> > > > > > I
> > > > > > > was told they didn't break. I kept
> telling
> > > > them
> > > > > > they did because
> > > > > > they
> > > > > > > hurt something awful & I could tell but
> > x-rays
> > > > > > said they were ok. I
> > > > > > > went to ER & they gave me shots which
> > didn't
> > > > even
> > > > > > touch the pain (I
> > > > > > > am a lightweight with meds which told me
> > for
> > > > sure
> > > > > > they were broken)
> > > > > > &
> > > > > > > they said no torn muscles maybe no
> broken
> > > > bones.
> > > > > > Go to your Family
> > > > > > > Practice doctor if no better by next
> week,
> > > > which I
> > > > > > did & she was
> > > > > > > booked so another doc there just gave me
> > meds
> > > > &
> > > > > > made me a follow up
> > > > > > > in 2 weeks. By then I felt like I was
> > dying.
> > > > My
> > > > > > doctor is great she
> > > > > > > redid x-rays & gave me better meds &
> sent
> > me
>
=== message truncated ===




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