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I think I have Lupus or maybe I am just crazy?!   Message List  
Reply | Forward Message #782 of 1042 |
Re: [UNdiagnosedMS] Re: I think I have Lupus or maybe I am just crazy?!

kat, i have'nt got a diagnosis either but i still received dissability, and my insurance will start in june. so you might look into it cause it would'nt hurt. your kids sound alot like mine. and my oldest is the same way with her dad. oh, by the way i don't know what your husband makes but i don't think it's based by income. if your doctor fills you're dissabled then that should get the ball rollin. ask your doctors about it. have a good evening  carol riley

Kat <lonelykitykat@...> wrote:
yes, Lucas (my youngest) is the same way & when my
other son is around he is the same way. They worry
about me a lot & try to keep me from doing things. The
older one barely speaks with his dad because he is so
angry at him for how he gets with me for not doing
things. He can't stand it. Is there a way to get help
somehow around the house & have insurance pay for it?
I am not sure because this is all pretty new to me but
it sure would help. I can't afford to pay someone. But
I am not on SSI because I still don't have a complete
diagnosis (& I dont' think I would qualify anywya with
my husband's income), but I do have very good
insurance. I guess it depends on the insurance, huh?
Dumb questions I guess, sorry! :)
Kat
--- carol <boomersoonercriley@yahoo.com> wrote:

> --- In UNdiagnosedMS@yahoogroups.com, Kat
> <lonelykitykat@...> wrote:
> >
> > Sounds like you have a family like mine! :) My
> sons
> > try to help, but only one still lives at home (the
> > other is 19 & has a place with his best friend &
> > fiance) & the other is 15, but has medical
> problems &
> > an autistic disorder. So he tries, but just isn't
> very
> > good at it. He doesn't care much about cleanliness
> > because of the autistic disorder & is sort of like
> a 5
> > or 6 yr. old in most of his abilities anyway. The
> > older one does what he can, but you know how crazy
> > life is when you are that age so I try not to ask
> too
> > much from him. He should be enjoying this part of
> his
> > life & dealt with enough when he lived here. My
> > husband doesn't clean up at all. He works about
> 80-90
> > hours a week to give him credit, but he complains
> > about the mess without ever trying to do anything
> &
> > that really gets to me. When I do clean up I end
> up in
> > bed for a couple of days miserable, so it really
> > sucks. I can't even take a freaking bath right now
> > because of the surgery & our downstairs bathroom
> is
> > now in the dining room because it has been being
> > renovated for a couple months now. So if I want to
> > clean up I have to do the sponge bath thing.
> YUCK!! He
> > put the tub/shower in over a month ago, but
> somehow
> > can't manage to finish it so I can get clean!
> Sorry, I
> > am just really fed up & I am sick of everything
> being
> > on my shoulders. Today I did work a bit on picking
> up
> > our room. I am tired, but you are right it is nice
> to
> > have things a bit better. With all the renovations
> > around here the messes like dust, etc pretty much
> have
> > to just wait because there is too much stuff
> sitting
> > around where it doesn't belong to be able to do
> much.
> > It is more of a case of straightening the boxes of
> > stuff that get knocked over by my puppies & stuff
> like
> > that. Nice to get all this off my chest though!!
> > Thanks!
> > Kat
> > --- carol <boomersoonercriley@...> wrote:
> >
> > > --- In UNdiagnosedMS@yahoogroups.com, Kat
> > > <lonelykitykat@> wrote:
> > > >
> > > > Now they think it is MS because I have nerve
> > > damage in
> > > > my legs. I am having a really rough time. I
> have
> > > > secondary addison's disease & just had an
> > > emergency
> > > > appendectomy last week. I really feel like I
> am
> > > going
> > > > nuts somedays because I am so tired & can't
> get
> > > help
> > > > from anyone at home so my house is trashed.
> And I
> > > just
> > > > want things to get easier for a change!!
> > > > Thank you for your email. It really helps to
> talk
> > > to
> > > > other people going through similiar things. My
> > > life is
> > > > really stressful which I think is making
> > > everything
> > > > worse, but there isn't really anything I can
> do
> > > about
> > > > it.
> > > > Take care,
> > > > Kat
> > > > --- carol <boomersoonercriley@> wrote:
> > > >
> > > > > --- In UNdiagnosedMS@yahoogroups.com,
> > > > > "lonelykitykat"
> > > > > <lonelykitykat@> wrote:
> > > > > >
> > > > > > Hi, my name is Kathleen. I am 41. I have
> been
> > > ill
> > > > > for 7 months now
> > > > > > with no relief. I got bronchitis in May.
> And
> > > broke
> > > > > 2 ribs coughing.
> > > > > I
> > > > > > was told they didn't break. I kept telling
> > > them
> > > > > they did because
> > > > > they
> > > > > > hurt something awful & I could tell but
> x-rays
> > > > > said they were ok. I
> > > > > > went to ER & they gave me shots which
> didn't
> > > even
> > > > > touch the pain (I
> > > > > > am a lightweight with meds which told me
> for
> > > sure
> > > > > they were broken)
> > > > > &
> > > > > > they said no torn muscles maybe no broken
> > > bones.
> > > > > Go to your Family
> > > > > > Practice doctor if no better by next week,
> > > which I
> > > > > did & she was
> > > > > > booked so another doc there just gave me
> meds
> > > &
> > > > > made me a follow up
> > > > > > in 2 weeks. By then I felt like I was
> dying.
> > > My
> > > > > doctor is great she
> > > > > > redid x-rays & gave me better meds & sent
> me
> > > for
> > > > > ct scan (which
> > > > > > showed what x-rays didn't that yes there
> was
> > > not
> > > > > one but 2
> > > > > fractures!
> > > > >
> > > > >
> > > > > dear kathlean, i'm sorry for what you are
> going
> > > > > through but i know
> > > > > exactly what your talking about. i've been
> the
> > > same
> > > > > way for 3 years.
> > > > > probably everybody in this group knows. i do
> > > know
> > > > > the lord will take
> > > > > care of us. we just have to turn it over to
> him.
> > > > > sometimes that's the
> > > > > hardest part, but once we do it i think it
> will
> > > get
> > > > > better. please
> > > > > talk to me any time you want.
> > > > > boomersoonercriley@ carol
> > > > > riley
> > > > >
> > > > >
> > > > >
> > > > > > They were under the breast so difficult
> for
> > > x-rays
> > > > > to see). I still
> > > > > > haven't healed from them. She got me a
> bone
> > > scan,
> > > > > which turned out
> > > > > > normal. An MRI, sent me to a GI doctor, an
> > > > > endocronogist, and I go
> > > > > to
> > > > > > a rheumotologist this week. And she has
> done
> > > every
> > > > > imaginable test
> > > > > > she can on my blood that she is able to
> from
> > > her
> > > > > office. I also get
> > > > > > an intermittent rash at night that is
> awful &
> > > > > keeps me awake &
> > > > > > terrible stomach pain. And I am so tired I
> > > have
> > > > > had to give up my
> > > > > > business that had just begun to get off
> the
> > > > > ground. And my joints
> > > > > > hurt badly after doing hardly anything.
>
=== message truncated ===

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Fri Mar 30, 2007 10:54 pm

boomersooner...
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Message #782 of 1042 |
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Hi, my name is Kathleen. I am 41. I have been ill for 7 months now with no relief. I got bronchitis in May. And broke 2 ribs coughing. I was told they didn't...
lonelykitykat
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Jan 3, 2007
2:10 am

Kathleen, I am sorry you experiencing difficulty. Happy 20th Anniversary! Being together for 20 years and parenting an autistic child shows you have the...
Tee
brooklyneze
Offline Send Email
Jan 4, 2007
6:04 am

Now they think it is MS because I have nerve damage in my legs. I am having a really rough time. I have secondary addison's disease & just had an emergency ...
Kat
lonelykitykat
Offline Send Email
Mar 27, 2007
7:49 pm

Sounds like you have a family like mine! :) My sons try to help, but only one still lives at home (the other is 19 & has a place with his best friend & fiance)...
Kat
lonelykitykat
Offline Send Email
Mar 27, 2007
10:07 pm

sorry you are not feeling very well. The addison's is a hormonal problem with adrenal glands. It causes fatigue, joint pain & my blood pressure & blood sugar ...
Kat
lonelykitykat
Offline Send Email
Mar 29, 2007
3:23 pm

Things went fine at the doctor's office. It was my gastro dr. that sent me to the hospital for the appendectomy. SHe just wanted to make sure I was doing ok...
Kat
lonelykitykat
Offline Send Email
Mar 29, 2007
10:41 pm

yes, Lucas (my youngest) is the same way & when my other son is around he is the same way. They worry about me a lot & try to keep me from doing things. The ...
Kat
lonelykitykat
Offline Send Email
Mar 29, 2007
11:02 pm

kat, i have'nt got a diagnosis either but i still received dissability, and my insurance will start in june. so you might look into it cause it would'nt hurt....
Carol Riley
boomersooner...
Offline Send Email
Mar 30, 2007
10:54 pm

I think that SSI is based on income & SSDI is not. I have asked my son's case worker (he is on a Medicaid waiver for all his problems) & she knew a lot about ...
Kat
lonelykitykat
Offline Send Email
Apr 1, 2007
2:07 am
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