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I think I have Lupus or maybe I am just crazy?!   Message List  
Reply | Forward Message #776 of 1041 |
Re: [UNdiagnosedMS] Re: I think I have Lupus or maybe I am just crazy?!

Things went fine at the doctor's office. It was my
gastro dr. that sent me to the hospital for the
appendectomy. SHe just wanted to make sure I was doing
ok afterwards.
My husband is the same way about dinner, but he works
for a hotel that has a 3 star chef so I told him if he
wants to be cooked for then eat there! I eat a lot of
frozen dinners myself & so does my son, he just isn't
able to cook without supervision & if I am tired it is
just easier. Makes me feel awful not to cook, but it
was one of the things I decided I had to let go off &
not do unless I am up to it.
I figure he ought to be bringing me food from the
hotel since I am so sick all the time. So I shouldn't
really feel badly about it. Isn't like he is making
sure I get to eat. Doesn't help a whole lot, but makes
me mad enough sometimes to not feel guilty! :)
Try to take care!
Kat

--- Carol Riley <boomersoonercriley@...> wrote:

> high kat, thanks for the info. have they told you it
> might be ms? i can see where these doctors have a
> hard time making a diagnosis. there are so many
> diseases out there that have the same symptoms, it's
> incredible. well i'll pray for you while your at the
> doctors office. i better go make sure i have
> something laid out for supper. i did'nt last night
> and my husband was pretty upset with me. i told him
> how my feet where feeling but that did'nt seem to
> matter over his stomach. oh well, that what 25yrs of
> marriage does for you. take care and god bless
> your friend carol riley
>
> Kat <lonelykitykat@...> wrote:
> sorry you are not feeling very well. The
> addison's is
> a hormonal problem with adrenal glands. It causes
> fatigue, joint pain & my blood pressure & blood
> sugar
> to go very low when under physical or emotional
> stress
> because my body does not produce the needed adrenal
> response to them. It is pretty rare to get & we
> thought it was primary until the neurological
> problems
> were found & then realized it is secondary to an
> autoimmune disorder most likely. It makes pretty
> much
> all healing difficult & surgeries & treatments more
> dangerous. Which is probably why getting over the
> appendectomy is so difficult. I am still working on
> gettting meds for the problem but had a difficult
> time
> with an endocronologist so my family doctor is
> handling it for right now. Luckily, she is a great
> doctor because my insurance doesn't have many endo's
> in this area so getting another one has been a drawn
> out process. It is a lot like the opposite of
> diabetes
> in how my symptoms react because I have to be really
> careful not to let my sugar get low or I am a wreck
> all day! I seem to get these diseases that are
> difficult to diagnose for some reason because it is
> another thing that often gets diagnosed by exclusion
> of tons of other things. The most obvious thing is I
> respond to the treatments that we have tried. There
> should be a test where blood is drawn every half
> hour
> throughout several hours, but my family doctor sees
> no
> reason to put me through that when I respond to the
> treatments. I am very glad of that because I am sick
> of getting blood drawn!! So many tests have been
> done
> the last few months that I tease my doctor that she
> has more of my blood than I do!! Well, I have a dr.
> appt in a few so I better get ready, but I wanted to
> send a reply first. I didn't respond to each email
> because of the pain in the neck yahoo is being with
> multiple copies of everything, but it is wonderful
> to
> find someone I can talk with about all of this!! And
> I
> will reply to the rest in awhile.
> Take care,
> Kat
> --- carol <boomersoonercriley@...> wrote:
>
> > --- In UNdiagnosedMS@yahoogroups.com, Kat
> > <lonelykitykat@...> wrote:
> > >
> > > Now they think it is MS because I have nerve
> > damage in
> > > my legs. I am having a really rough time. I have
> > > secondary addison's disease & just had an
> > emergency
> > > appendectomy last week. I really feel like I am
> > going
> > > nuts somedays because I am so tired & can't get
> > help
> > > from anyone at home so my house is trashed. And
> I
> > just
> > > want things to get easier for a change!!
> > > Thank you for your email. It really helps to
> talk
> > to
> > > other people going through similiar things. My
> > life is
> > > really stressful which I think is making
> > everything
> > > worse, but there isn't really anything I can do
> > about
> > > it.
> > > Take care,
> > > Kat
> > > --- carol <boomersoonercriley@...> wrote:
> > >
> > > > --- In UNdiagnosedMS@yahoogroups.com,
> > > > "lonelykitykat"
> > > > <lonelykitykat@> wrote:
> > > > >
> > > > > Hi, my name is Kathleen. I am 41. I have
> been
> > ill
> > > > for 7 months now
> > > > > with no relief. I got bronchitis in May. And
> > broke
> > > > 2 ribs coughing.
> > > > I
> > > > > was told they didn't break. I kept telling
> > them
> > > > they did because
> > > > they
> > > > > hurt something awful & I could tell but
> x-rays
> > > > said they were ok. I
> > > > > went to ER & they gave me shots which didn't
> > even
> > > > touch the pain (I
> > > > > am a lightweight with meds which told me for
> > sure
> > > > they were broken)
> > > > &
> > > > > they said no torn muscles maybe no broken
> > bones.
> > > > Go to your Family
> > > > > Practice doctor if no better by next week,
> > which I
> > > > did & she was
> > > > > booked so another doc there just gave me
> meds
> > &
> > > > made me a follow up
> > > > > in 2 weeks. By then I felt like I was dying.
> > My
> > > > doctor is great she
> > > > > redid x-rays & gave me better meds & sent me
> > for
> > > > ct scan (which
> > > > > showed what x-rays didn't that yes there was
> > not
> > > > one but 2
> > > > fractures!
> > > >
> > > >
> > > > dear kathlean, i'm sorry for what you are
> going
> > > > through but i know
> > > > exactly what your talking about. i've been the
> > same
> > > > way for 3 years.
> > > > probably everybody in this group knows. i do
> > know
> > > > the lord will take
> > > > care of us. we just have to turn it over to
> him.
> > > > sometimes that's the
> > > > hardest part, but once we do it i think it
> will
> > get
> > > > better. please
> > > > talk to me any time you want.
> > > > boomersoonercriley@... carol
> > > > riley
> > > >
> > > >
> > > >
> > > > > They were under the breast so difficult for
> > x-rays
> > > > to see). I still
> > > > > haven't healed from them. She got me a bone
> > scan,
> > > > which turned out
> > > > > normal. An MRI, sent me to a GI doctor, an
> > > > endocronogist, and I go
> > > > to
> > > > > a rheumotologist this week. And she has done
> > every
> > > > imaginable test
> > > > > she can on my blood that she is able to from
> > her
> > > > office. I also get
> > > > > an intermittent rash at night that is awful
> &
> > > > keeps me awake &
> > > > > terrible stomach pain. And I am so tired I
> > have
> > > > had to give up my
> > > > > business that had just begun to get off the
> > > > ground. And my joints
> > > > > hurt badly after doing hardly anything.
> > Everything
> > > > comes back
> > > > normal
> > > > > & it is frustrating because something is
> > wrong. My
> > > > husband is
> > > > > irritated with me because I don't even have
> > the
> > > > strength to make
>
=== message truncated ===




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Thu Mar 29, 2007 10:41 pm

lonelykitykat
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Message #776 of 1041 |
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Hi, my name is Kathleen. I am 41. I have been ill for 7 months now with no relief. I got bronchitis in May. And broke 2 ribs coughing. I was told they didn't...
lonelykitykat
Offline Send Email
Jan 3, 2007
2:10 am

Kathleen, I am sorry you experiencing difficulty. Happy 20th Anniversary! Being together for 20 years and parenting an autistic child shows you have the...
Tee
brooklyneze
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Jan 4, 2007
6:04 am

Now they think it is MS because I have nerve damage in my legs. I am having a really rough time. I have secondary addison's disease & just had an emergency ...
Kat
lonelykitykat
Offline Send Email
Mar 27, 2007
7:49 pm

Sounds like you have a family like mine! :) My sons try to help, but only one still lives at home (the other is 19 & has a place with his best friend & fiance)...
Kat
lonelykitykat
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Mar 27, 2007
10:07 pm

sorry you are not feeling very well. The addison's is a hormonal problem with adrenal glands. It causes fatigue, joint pain & my blood pressure & blood sugar ...
Kat
lonelykitykat
Offline Send Email
Mar 29, 2007
3:23 pm

Things went fine at the doctor's office. It was my gastro dr. that sent me to the hospital for the appendectomy. SHe just wanted to make sure I was doing ok...
Kat
lonelykitykat
Offline Send Email
Mar 29, 2007
10:41 pm

yes, Lucas (my youngest) is the same way & when my other son is around he is the same way. They worry about me a lot & try to keep me from doing things. The ...
Kat
lonelykitykat
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Mar 29, 2007
11:02 pm

kat, i have'nt got a diagnosis either but i still received dissability, and my insurance will start in june. so you might look into it cause it would'nt hurt....
Carol Riley
boomersooner...
Offline Send Email
Mar 30, 2007
10:54 pm

I think that SSI is based on income & SSDI is not. I have asked my son's case worker (he is on a Medicaid waiver for all his problems) & she knew a lot about ...
Kat
lonelykitykat
Offline Send Email
Apr 1, 2007
2:07 am
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