sorry you are not feeling very well. The addison's is
a hormonal problem with adrenal glands. It causes
fatigue, joint pain & my blood pressure & blood sugar
to go very low when under physical or emotional stress
because my body does not produce the needed adrenal
response to them. It is pretty rare to get & we
thought it was primary until the neurological problems
were found & then realized it is secondary to an
autoimmune disorder most likely. It makes pretty much
all healing difficult & surgeries & treatments more
dangerous. Which is probably why getting over the
appendectomy is so difficult. I am still working on
gettting meds for the problem but had a difficult time
with an endocronologist so my family doctor is
handling it for right now. Luckily, she is a great
doctor because my insurance doesn't have many endo's
in this area so getting another one has been a drawn
out process. It is a lot like the opposite of diabetes
in how my symptoms react because I have to be really
careful not to let my sugar get low or I am a wreck
all day! I seem to get these diseases that are
difficult to diagnose for some reason because it is
another thing that often gets diagnosed by exclusion
of tons of other things. The most obvious thing is I
respond to the treatments that we have tried. There
should be a test where blood is drawn every half hour
throughout several hours, but my family doctor sees no
reason to put me through that when I respond to the
treatments. I am very glad of that because I am sick
of getting blood drawn!! So many tests have been done
the last few months that I tease my doctor that she
has more of my blood than I do!! Well, I have a dr.
appt in a few so I better get ready, but I wanted to
send a reply first. I didn't respond to each email
because of the pain in the neck yahoo is being with
multiple copies of everything, but it is wonderful to
find someone I can talk with about all of this!! And I
will reply to the rest in awhile.
Take care,
Kat
--- carol <boomersoonercriley@...> wrote:

> --- In UNdiagnosedMS@yahoogroups.com, Kat
> <lonelykitykat@...> wrote:
> >
> > Now they think it is MS because I have nerve
> damage in
> > my legs. I am having a really rough time. I have
> > secondary addison's disease & just had an
> emergency
> > appendectomy last week. I really feel like I am
> going
> > nuts somedays because I am so tired & can't get
> help
> > from anyone at home so my house is trashed. And I
> just
> > want things to get easier for a change!!
> > Thank you for your email. It really helps to talk
> to
> > other people going through similiar things. My
> life is
> > really stressful which I think is making
> everything
> > worse, but there isn't really anything I can do
> about
> > it.
> > Take care,
> > Kat
> > --- carol <boomersoonercriley@...> wrote:
> >
> > > --- In UNdiagnosedMS@yahoogroups.com,
> > > "lonelykitykat"
> > > <lonelykitykat@> wrote:
> > > >
> > > > Hi, my name is Kathleen. I am 41. I have been
> ill
> > > for 7 months now
> > > > with no relief. I got bronchitis in May. And
> broke
> > > 2 ribs coughing.
> > > I
> > > > was told they didn't break. I kept telling
> them
> > > they did because
> > > they
> > > > hurt something awful & I could tell but x-rays
> > > said they were ok. I
> > > > went to ER & they gave me shots which didn't
> even
> > > touch the pain (I
> > > > am a lightweight with meds which told me for
> sure
> > > they were broken)
> > > &
> > > > they said no torn muscles maybe no broken
> bones.
> > > Go to your Family
> > > > Practice doctor if no better by next week,
> which I
> > > did & she was
> > > > booked so another doc there just gave me meds
> &
> > > made me a follow up
> > > > in 2 weeks. By then I felt like I was dying.
> My
> > > doctor is great she
> > > > redid x-rays & gave me better meds & sent me
> for
> > > ct scan (which
> > > > showed what x-rays didn't that yes there was
> not
> > > one but 2
> > > fractures!
> > >
> > >
> > > dear kathlean, i'm sorry for what you are going
> > > through but i know
> > > exactly what your talking about. i've been the
> same
> > > way for 3 years.
> > > probably everybody in this group knows. i do
> know
> > > the lord will take
> > > care of us. we just have to turn it over to him.
> > > sometimes that's the
> > > hardest part, but once we do it i think it will
> get
> > > better. please
> > > talk to me any time you want.
> > > boomersoonercriley@... carol
> > > riley
> > >
> > >
> > >
> > > > They were under the breast so difficult for
> x-rays
> > > to see). I still
> > > > haven't healed from them. She got me a bone
> scan,
> > > which turned out
> > > > normal. An MRI, sent me to a GI doctor, an
> > > endocronogist, and I go
> > > to
> > > > a rheumotologist this week. And she has done
> every
> > > imaginable test
> > > > she can on my blood that she is able to from
> her
> > > office. I also get
> > > > an intermittent rash at night that is awful &
> > > keeps me awake &
> > > > terrible stomach pain. And I am so tired I
> have
> > > had to give up my
> > > > business that had just begun to get off the
> > > ground. And my joints
> > > > hurt badly after doing hardly anything.
> Everything
> > > comes back
> > > normal
> > > > & it is frustrating because something is
> wrong. My
> > > husband is
> > > > irritated with me because I don't even have
> the
> > > strength to make
> > > him
> > > > dinner most nights & since I have no diagnosis
> I
> > > don't think he
> > > > believes there is anything really wrong with
> me. I
> > > was so exhausted
> > > > after making Christmas dinner I was so tired I
> > > ended up with a cold
> > > > that I think has turned into another bout of
> > > bronchitis on me. This
> > > > is crazy! I used to ride horses & be really
> pretty
> > > healthy. I was
> > > > always an anxious person. I had tons of stress
> > > even as a kid (even
> > > > more as an adult), but I wasn't unhealthy
> > > otherwise. I got sick,
> > > but
> > > > I would get over it. I had horses fall on me &
> > > break ribs, but they
> > > > would heal. I would move all the furniture in
> the
> > > house all by
> > > > myself. I am not used to depending on anyone
> for
> > > much of anything.
> > > > ANd I HATE this! I don't know what to do right
> > > now. I feel better
> > > > when I rest & my doctor insists that I do &
> even
> > > made me get a
> > > > temporary handicap pass for my car while we
> figure
> > > this out but
> > > this
> > > > is taking forever to figure out & I have an
> > > autistic son with an
> > > > immune disorder who is having to take care of
> ME
> > > right now & who
> > > > needs me to take care of him instead. I want
> to
> > > know what I should
> > > do
> > > > to try to get some answers! Does anyone have
> any
> > > advice?? Sorry! I
> > > > feel like I am losing my husband & my mind
> here.
> > > He was so
> > > supportive
> > > > for a few weeks, but now he is just sick of it
> > > just like I am. 20
> > > > years together this week & this is what it
> took to
> > > mess us up.
> > > > Because it seems like I am making it all up
> after
> > > so many normal
> > > > tests. I know I am not. But I can see how it
> must
> > > look to him. And
> > > I
> > > > love him so much. I don't want him to think
> this
> > > of me. I am even
> > > > beginning to think I am crazy myself
> sometimes.
> > > Now I am rambling.
> > > > See why I need advice???!
> > > >
> > >
> > >
> > > kat, how are you doing? i'm not having a good
> day today. my feet
> are very swollen and it hurts to walk. then they
> gave
=== message truncated ===




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