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I think I have Lupus or maybe I am just crazy?!   Message List  
Reply | Forward Message #747 of 1041 |
Re: [UNdiagnosedMS] Re: I think I have Lupus or maybe I am just crazy?!

Sounds like you have a family like mine! :) My sons
try to help, but only one still lives at home (the
other is 19 & has a place with his best friend &
fiance) & the other is 15, but has medical problems &
an autistic disorder. So he tries, but just isn't very
good at it. He doesn't care much about cleanliness
because of the autistic disorder & is sort of like a 5
or 6 yr. old in most of his abilities anyway. The
older one does what he can, but you know how crazy
life is when you are that age so I try not to ask too
much from him. He should be enjoying this part of his
life & dealt with enough when he lived here. My
husband doesn't clean up at all. He works about 80-90
hours a week to give him credit, but he complains
about the mess without ever trying to do anything &
that really gets to me. When I do clean up I end up in
bed for a couple of days miserable, so it really
sucks. I can't even take a freaking bath right now
because of the surgery & our downstairs bathroom is
now in the dining room because it has been being
renovated for a couple months now. So if I want to
clean up I have to do the sponge bath thing. YUCK!! He
put the tub/shower in over a month ago, but somehow
can't manage to finish it so I can get clean! Sorry, I
am just really fed up & I am sick of everything being
on my shoulders. Today I did work a bit on picking up
our room. I am tired, but you are right it is nice to
have things a bit better. With all the renovations
around here the messes like dust, etc pretty much have
to just wait because there is too much stuff sitting
around where it doesn't belong to be able to do much.
It is more of a case of straightening the boxes of
stuff that get knocked over by my puppies & stuff like
that. Nice to get all this off my chest though!!
Thanks!
Kat
--- carol <boomersoonercriley@...> wrote:

> --- In UNdiagnosedMS@yahoogroups.com, Kat
> <lonelykitykat@...> wrote:
> >
> > Now they think it is MS because I have nerve
> damage in
> > my legs. I am having a really rough time. I have
> > secondary addison's disease & just had an
> emergency
> > appendectomy last week. I really feel like I am
> going
> > nuts somedays because I am so tired & can't get
> help
> > from anyone at home so my house is trashed. And I
> just
> > want things to get easier for a change!!
> > Thank you for your email. It really helps to talk
> to
> > other people going through similiar things. My
> life is
> > really stressful which I think is making
> everything
> > worse, but there isn't really anything I can do
> about
> > it.
> > Take care,
> > Kat
> > --- carol <boomersoonercriley@...> wrote:
> >
> > > --- In UNdiagnosedMS@yahoogroups.com,
> > > "lonelykitykat"
> > > <lonelykitykat@> wrote:
> > > >
> > > > Hi, my name is Kathleen. I am 41. I have been
> ill
> > > for 7 months now
> > > > with no relief. I got bronchitis in May. And
> broke
> > > 2 ribs coughing.
> > > I
> > > > was told they didn't break. I kept telling
> them
> > > they did because
> > > they
> > > > hurt something awful & I could tell but x-rays
> > > said they were ok. I
> > > > went to ER & they gave me shots which didn't
> even
> > > touch the pain (I
> > > > am a lightweight with meds which told me for
> sure
> > > they were broken)
> > > &
> > > > they said no torn muscles maybe no broken
> bones.
> > > Go to your Family
> > > > Practice doctor if no better by next week,
> which I
> > > did & she was
> > > > booked so another doc there just gave me meds
> &
> > > made me a follow up
> > > > in 2 weeks. By then I felt like I was dying.
> My
> > > doctor is great she
> > > > redid x-rays & gave me better meds & sent me
> for
> > > ct scan (which
> > > > showed what x-rays didn't that yes there was
> not
> > > one but 2
> > > fractures!
> > >
> > >
> > > dear kathlean, i'm sorry for what you are going
> > > through but i know
> > > exactly what your talking about. i've been the
> same
> > > way for 3 years.
> > > probably everybody in this group knows. i do
> know
> > > the lord will take
> > > care of us. we just have to turn it over to him.
> > > sometimes that's the
> > > hardest part, but once we do it i think it will
> get
> > > better. please
> > > talk to me any time you want.
> > > boomersoonercriley@... carol
> > > riley
> > >
> > >
> > >
> > > > They were under the breast so difficult for
> x-rays
> > > to see). I still
> > > > haven't healed from them. She got me a bone
> scan,
> > > which turned out
> > > > normal. An MRI, sent me to a GI doctor, an
> > > endocronogist, and I go
> > > to
> > > > a rheumotologist this week. And she has done
> every
> > > imaginable test
> > > > she can on my blood that she is able to from
> her
> > > office. I also get
> > > > an intermittent rash at night that is awful &
> > > keeps me awake &
> > > > terrible stomach pain. And I am so tired I
> have
> > > had to give up my
> > > > business that had just begun to get off the
> > > ground. And my joints
> > > > hurt badly after doing hardly anything.
> Everything
> > > comes back
> > > normal
> > > > & it is frustrating because something is
> wrong. My
> > > husband is
> > > > irritated with me because I don't even have
> the
> > > strength to make
> > > him
> > > > dinner most nights & since I have no diagnosis
> I
> > > don't think he
> > > > believes there is anything really wrong with
> me. I
> > > was so exhausted
> > > > after making Christmas dinner I was so tired I
> > > ended up with a cold
> > > > that I think has turned into another bout of
> > > bronchitis on me. This
> > > > is crazy! I used to ride horses & be really
> pretty
> > > healthy. I was
> > > > always an anxious person. I had tons of stress
> > > even as a kid (even
> > > > more as an adult), but I wasn't unhealthy
> > > otherwise. I got sick,
> > > but
> > > > I would get over it. I had horses fall on me &
> > > break ribs, but they
> > > > would heal. I would move all the furniture in
> the
> > > house all by
> > > > myself. I am not used to depending on anyone
> for
> > > much of anything.
> > > > ANd I HATE this! I don't know what to do right
> > > now. I feel better
> > > > when I rest & my doctor insists that I do &
> even
> > > made me get a
> > > > temporary handicap pass for my car while we
> figure
> > > this out but
> > > this
> > > > is taking forever to figure out & I have an
> > > autistic son with an
> > > > immune disorder who is having to take care of
> ME
> > > right now & who
> > > > needs me to take care of him instead. I want
> to
> > > know what I should
> > > do
> > > > to try to get some answers! Does anyone have
> any
> > > advice?? Sorry! I
> > > > feel like I am losing my husband & my mind
> here.
> > > He was so
> > > supportive
> > > > for a few weeks, but now he is just sick of it
> > > just like I am. 20
> > > > years together this week & this is what it
> took to
> > > mess us up.
> > > > Because it seems like I am making it all up
> after
> > > so many normal
> > > > tests. I know I am not. But I can see how it
> must
> > > look to him. And
> > > I
> > > > love him so much. I don't want him to think
> this
> > > of me. I am even
> > > > beginning to think I am crazy myself
> sometimes.
> > > Now I am rambling.
> > > > See why I need advice???!
> > > >
> > >
> > > dear kat, i don't think your crazy because if
> you were then there
> would be a whole lot of us going crazy. i know the
> pain your talking
>
=== message truncated ===




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Tue Mar 27, 2007 10:07 pm

lonelykitykat
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Forward
Message #747 of 1041 |
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Hi, my name is Kathleen. I am 41. I have been ill for 7 months now with no relief. I got bronchitis in May. And broke 2 ribs coughing. I was told they didn't...
lonelykitykat
Offline Send Email
Jan 3, 2007
2:10 am

Kathleen, I am sorry you experiencing difficulty. Happy 20th Anniversary! Being together for 20 years and parenting an autistic child shows you have the...
Tee
brooklyneze
Offline Send Email
Jan 4, 2007
6:04 am

Now they think it is MS because I have nerve damage in my legs. I am having a really rough time. I have secondary addison's disease & just had an emergency ...
Kat
lonelykitykat
Offline Send Email
Mar 27, 2007
7:49 pm

Sounds like you have a family like mine! :) My sons try to help, but only one still lives at home (the other is 19 & has a place with his best friend & fiance)...
Kat
lonelykitykat
Offline Send Email
Mar 27, 2007
10:07 pm

sorry you are not feeling very well. The addison's is a hormonal problem with adrenal glands. It causes fatigue, joint pain & my blood pressure & blood sugar ...
Kat
lonelykitykat
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Mar 29, 2007
3:23 pm

Things went fine at the doctor's office. It was my gastro dr. that sent me to the hospital for the appendectomy. SHe just wanted to make sure I was doing ok...
Kat
lonelykitykat
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Mar 29, 2007
10:41 pm

yes, Lucas (my youngest) is the same way & when my other son is around he is the same way. They worry about me a lot & try to keep me from doing things. The ...
Kat
lonelykitykat
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Mar 29, 2007
11:02 pm

kat, i have'nt got a diagnosis either but i still received dissability, and my insurance will start in june. so you might look into it cause it would'nt hurt....
Carol Riley
boomersooner...
Offline Send Email
Mar 30, 2007
10:54 pm

I think that SSI is based on income & SSDI is not. I have asked my son's case worker (he is on a Medicaid waiver for all his problems) & she knew a lot about ...
Kat
lonelykitykat
Offline Send Email
Apr 1, 2007
2:07 am
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