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I think I have Lupus or maybe I am just crazy?!   Message List  
Reply | Forward Message #745 of 1041 |
Re: [UNdiagnosedMS] Re: I think I have Lupus or maybe I am just crazy?!

Now they think it is MS because I have nerve damage in
my legs. I am having a really rough time. I have
secondary addison's disease & just had an emergency
appendectomy last week. I really feel like I am going
nuts somedays because I am so tired & can't get help
from anyone at home so my house is trashed. And I just
want things to get easier for a change!!
Thank you for your email. It really helps to talk to
other people going through similiar things. My life is
really stressful which I think is making everything
worse, but there isn't really anything I can do about
it.
Take care,
Kat
--- carol <boomersoonercriley@...> wrote:

> --- In UNdiagnosedMS@yahoogroups.com,
> "lonelykitykat"
> <lonelykitykat@...> wrote:
> >
> > Hi, my name is Kathleen. I am 41. I have been ill
> for 7 months now
> > with no relief. I got bronchitis in May. And broke
> 2 ribs coughing.
> I
> > was told they didn't break. I kept telling them
> they did because
> they
> > hurt something awful & I could tell but x-rays
> said they were ok. I
> > went to ER & they gave me shots which didn't even
> touch the pain (I
> > am a lightweight with meds which told me for sure
> they were broken)
> &
> > they said no torn muscles maybe no broken bones.
> Go to your Family
> > Practice doctor if no better by next week, which I
> did & she was
> > booked so another doc there just gave me meds &
> made me a follow up
> > in 2 weeks. By then I felt like I was dying. My
> doctor is great she
> > redid x-rays & gave me better meds & sent me for
> ct scan (which
> > showed what x-rays didn't that yes there was not
> one but 2
> fractures!
>
>
> dear kathlean, i'm sorry for what you are going
> through but i know
> exactly what your talking about. i've been the same
> way for 3 years.
> probably everybody in this group knows. i do know
> the lord will take
> care of us. we just have to turn it over to him.
> sometimes that's the
> hardest part, but once we do it i think it will get
> better. please
> talk to me any time you want.
> boomersoonercriley@... carol
> riley
>
>
>
> > They were under the breast so difficult for x-rays
> to see). I still
> > haven't healed from them. She got me a bone scan,
> which turned out
> > normal. An MRI, sent me to a GI doctor, an
> endocronogist, and I go
> to
> > a rheumotologist this week. And she has done every
> imaginable test
> > she can on my blood that she is able to from her
> office. I also get
> > an intermittent rash at night that is awful &
> keeps me awake &
> > terrible stomach pain. And I am so tired I have
> had to give up my
> > business that had just begun to get off the
> ground. And my joints
> > hurt badly after doing hardly anything. Everything
> comes back
> normal
> > & it is frustrating because something is wrong. My
> husband is
> > irritated with me because I don't even have the
> strength to make
> him
> > dinner most nights & since I have no diagnosis I
> don't think he
> > believes there is anything really wrong with me. I
> was so exhausted
> > after making Christmas dinner I was so tired I
> ended up with a cold
> > that I think has turned into another bout of
> bronchitis on me. This
> > is crazy! I used to ride horses & be really pretty
> healthy. I was
> > always an anxious person. I had tons of stress
> even as a kid (even
> > more as an adult), but I wasn't unhealthy
> otherwise. I got sick,
> but
> > I would get over it. I had horses fall on me &
> break ribs, but they
> > would heal. I would move all the furniture in the
> house all by
> > myself. I am not used to depending on anyone for
> much of anything.
> > ANd I HATE this! I don't know what to do right
> now. I feel better
> > when I rest & my doctor insists that I do & even
> made me get a
> > temporary handicap pass for my car while we figure
> this out but
> this
> > is taking forever to figure out & I have an
> autistic son with an
> > immune disorder who is having to take care of ME
> right now & who
> > needs me to take care of him instead. I want to
> know what I should
> do
> > to try to get some answers! Does anyone have any
> advice?? Sorry! I
> > feel like I am losing my husband & my mind here.
> He was so
> supportive
> > for a few weeks, but now he is just sick of it
> just like I am. 20
> > years together this week & this is what it took to
> mess us up.
> > Because it seems like I am making it all up after
> so many normal
> > tests. I know I am not. But I can see how it must
> look to him. And
> I
> > love him so much. I don't want him to think this
> of me. I am even
> > beginning to think I am crazy myself sometimes.
> Now I am rambling.
> > See why I need advice???!
> >
>
>
>




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Tue Mar 27, 2007 7:47 pm

lonelykitykat
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Forward
Message #745 of 1041 |
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Hi, my name is Kathleen. I am 41. I have been ill for 7 months now with no relief. I got bronchitis in May. And broke 2 ribs coughing. I was told they didn't...
lonelykitykat
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Jan 3, 2007
2:10 am

Kathleen, I am sorry you experiencing difficulty. Happy 20th Anniversary! Being together for 20 years and parenting an autistic child shows you have the...
Tee
brooklyneze
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Jan 4, 2007
6:04 am

Now they think it is MS because I have nerve damage in my legs. I am having a really rough time. I have secondary addison's disease & just had an emergency ...
Kat
lonelykitykat
Offline Send Email
Mar 27, 2007
7:49 pm

Sounds like you have a family like mine! :) My sons try to help, but only one still lives at home (the other is 19 & has a place with his best friend & fiance)...
Kat
lonelykitykat
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Mar 27, 2007
10:07 pm

sorry you are not feeling very well. The addison's is a hormonal problem with adrenal glands. It causes fatigue, joint pain & my blood pressure & blood sugar ...
Kat
lonelykitykat
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Mar 29, 2007
3:23 pm

Things went fine at the doctor's office. It was my gastro dr. that sent me to the hospital for the appendectomy. SHe just wanted to make sure I was doing ok...
Kat
lonelykitykat
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Mar 29, 2007
10:41 pm

yes, Lucas (my youngest) is the same way & when my other son is around he is the same way. They worry about me a lot & try to keep me from doing things. The ...
Kat
lonelykitykat
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Mar 29, 2007
11:02 pm

kat, i have'nt got a diagnosis either but i still received dissability, and my insurance will start in june. so you might look into it cause it would'nt hurt....
Carol Riley
boomersooner...
Offline Send Email
Mar 30, 2007
10:54 pm

I think that SSI is based on income & SSDI is not. I have asked my son's case worker (he is on a Medicaid waiver for all his problems) & she knew a lot about ...
Kat
lonelykitykat
Offline Send Email
Apr 1, 2007
2:07 am
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