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I think I have Lupus or maybe I am just crazy?!   Message List  
Reply | Forward Message #720 of 1041 |
Hi, my name is Kathleen. I am 41. I have been ill for 7 months now
with no relief. I got bronchitis in May. And broke 2 ribs coughing. I
was told they didn't break. I kept telling them they did because they
hurt something awful & I could tell but x-rays said they were ok. I
went to ER & they gave me shots which didn't even touch the pain (I
am a lightweight with meds which told me for sure they were broken) &
they said no torn muscles maybe no broken bones. Go to your Family
Practice doctor if no better by next week, which I did & she was
booked so another doc there just gave me meds & made me a follow up
in 2 weeks. By then I felt like I was dying. My doctor is great she
redid x-rays & gave me better meds & sent me for ct scan (which
showed what x-rays didn't that yes there was not one but 2 fractures!
They were under the breast so difficult for x-rays to see). I still
haven't healed from them. She got me a bone scan, which turned out
normal. An MRI, sent me to a GI doctor, an endocronogist, and I go to
a rheumotologist this week. And she has done every imaginable test
she can on my blood that she is able to from her office. I also get
an intermittent rash at night that is awful & keeps me awake &
terrible stomach pain. And I am so tired I have had to give up my
business that had just begun to get off the ground. And my joints
hurt badly after doing hardly anything. Everything comes back normal
& it is frustrating because something is wrong. My husband is
irritated with me because I don't even have the strength to make him
dinner most nights & since I have no diagnosis I don't think he
believes there is anything really wrong with me. I was so exhausted
after making Christmas dinner I was so tired I ended up with a cold
that I think has turned into another bout of bronchitis on me. This
is crazy! I used to ride horses & be really pretty healthy. I was
always an anxious person. I had tons of stress even as a kid (even
more as an adult), but I wasn't unhealthy otherwise. I got sick, but
I would get over it. I had horses fall on me & break ribs, but they
would heal. I would move all the furniture in the house all by
myself. I am not used to depending on anyone for much of anything.
ANd I HATE this! I don't know what to do right now. I feel better
when I rest & my doctor insists that I do & even made me get a
temporary handicap pass for my car while we figure this out but this
is taking forever to figure out & I have an autistic son with an
immune disorder who is having to take care of ME right now & who
needs me to take care of him instead. I want to know what I should do
to try to get some answers! Does anyone have any advice?? Sorry! I
feel like I am losing my husband & my mind here. He was so supportive
for a few weeks, but now he is just sick of it just like I am. 20
years together this week & this is what it took to mess us up.
Because it seems like I am making it all up after so many normal
tests. I know I am not. But I can see how it must look to him. And I
love him so much. I don't want him to think this of me. I am even
beginning to think I am crazy myself sometimes. Now I am rambling.
See why I need advice???!





Wed Jan 3, 2007 1:51 am

lonelykitykat
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Forward
Message #720 of 1041 |
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Hi, my name is Kathleen. I am 41. I have been ill for 7 months now with no relief. I got bronchitis in May. And broke 2 ribs coughing. I was told they didn't...
lonelykitykat
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Jan 3, 2007
2:10 am

Kathleen, I am sorry you experiencing difficulty. Happy 20th Anniversary! Being together for 20 years and parenting an autistic child shows you have the...
Tee
brooklyneze
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Jan 4, 2007
6:04 am

Now they think it is MS because I have nerve damage in my legs. I am having a really rough time. I have secondary addison's disease & just had an emergency ...
Kat
lonelykitykat
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Mar 27, 2007
7:49 pm

Sounds like you have a family like mine! :) My sons try to help, but only one still lives at home (the other is 19 & has a place with his best friend & fiance)...
Kat
lonelykitykat
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Mar 27, 2007
10:07 pm

sorry you are not feeling very well. The addison's is a hormonal problem with adrenal glands. It causes fatigue, joint pain & my blood pressure & blood sugar ...
Kat
lonelykitykat
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Mar 29, 2007
3:23 pm

Things went fine at the doctor's office. It was my gastro dr. that sent me to the hospital for the appendectomy. SHe just wanted to make sure I was doing ok...
Kat
lonelykitykat
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Mar 29, 2007
10:41 pm

yes, Lucas (my youngest) is the same way & when my other son is around he is the same way. They worry about me a lot & try to keep me from doing things. The ...
Kat
lonelykitykat
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Mar 29, 2007
11:02 pm

kat, i have'nt got a diagnosis either but i still received dissability, and my insurance will start in june. so you might look into it cause it would'nt hurt....
Carol Riley
boomersooner...
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Mar 30, 2007
10:54 pm

I think that SSI is based on income & SSDI is not. I have asked my son's case worker (he is on a Medicaid waiver for all his problems) & she knew a lot about ...
Kat
lonelykitykat
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Apr 1, 2007
2:07 am
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