Hi
I've posted this message on a couple of groups already, just want to
reach as many people as I can..so if you have seen this before
sorry..
My name is Sarah and I am writing in behalf of my sister Laura. She
is 23 and 3 weeks ago presented with Optical Neuritis. She has had
an MRI to be sure of the diagnosis and also, no MS was seen to be
present in her eye. She was warned that Optical Neuritis can be the
first sign of MS tho.
Last week, her whole leg slowly turned numb and heavy until she
could only drag her leg about and pull her foot from under her like
a flipper. She still has a basically 'lifeless' foot, with only a
little toe movement.
Her doctor firstly told her that it is most probably MS. She has
gone back to see him today and as her foot is not 100% better he has
told her that it will probably never get better...he has also
mentioned a fatal illness which it may be in place of MS but would
not give her the name again to look up, but this has frightened us
more than the MS....
As you can imagine, we are all in a panic and so I have turned to
the internet for help. I myself have type 1 diabetes and psoriatic
arthritis...our mum has sjrogrens syndrome, so auto immune disease
runs in the family.
I'm hoping someone will hear something familiar about my story. We
are totally new to this and are really scared about what it is and
what will happen. I know from my own diseases that you have to
research yourself to find answers and the best treatments. So I
really hope someone can offer some advice as we don't know what to
do or think about this situation.
Thanks
Sarah