Hi Michelle,

sorry to hear you are having such a diffiult time, I
am going into my 4th year of being sick w/o a definate
diagnosis I understnad how frustruating it is but
don't let them tell you its in your head, I went to
therapy after being referred by my first neruologist
and the psych dr said that I did not need to be in
therapy and it was not in my head. keep on advocating
for your yourself. have a great weekend, hope you are
well

Nicole
--- "(m) GottaLuvMnMs (m)" <gottaluvmnms@...>
wrote:

> hello george
> no i did not work around chemicals, i was a
> secretary dealing will million dollar contracts at a
> construction company daily...I could not even add or
> read and understand so I had to leave my work. I
> also was falling alot and very fatigued. Ive been
> told many things from MS to MG to Lupus to ADEM to a
> Virus, Conversion Disorder (in my head) and other
> things, now they said it take approx 5 years until
> they can follow the pattern and have a better idea.
> basically they are saying they dont know which is
> better than a guess and me knowing they are wrong.
> they are scared of lawsuits agains them now adays it
> seems to make a diagnosis and be wrong. Im getting
> treatment of the symptoms and for most of these
> diseases that is all they can offer if I knew the
> name. thanks for the reply, I know something is not
> normal becuase of my reflexes are hyper and the
> positive babinski etc. I wish it was just in my
> head and therapy would help <sigh> if some of them
> doctors only knew. take care,
> Michelle M.
>
> George Anderson <conniegeo1@...> wrote:
> Hi Michele
> Something nobody may have thaught
> about may be Toxic Neuropathy from a toxin .Do you
> Garden or have a job working with Potential toxins i
> have found some good web sites to look at ile send
> them to you if you wish .How long has this gone on
> .Ive been 4-5 yrs. now with starting at Dysarthria
> (hyper nasal speech ) then stiffness (spasticity )in
> the right leg .you might think about LImb Girdle
> Muscular Dystrophy .Ive been told ALS then CBGD then
> MG then PLS then MS then PLS again George
>
> "Michelle ;o)" <gottaluvmnms@...> wrote:
>
> I spent 4 days 3 nights in the hospital...for
> symptoms i believe are
> the MShug or muscular comtractions of the chest
> muscles...my chest
> gets so tight i can hardly breathe...its like i got
> brick on the
> chest or a squeeze....it comes and goes...lasts from
> minutes to
> hours at times...its uncomfortable...Im spinal
> negative for MS and
> no brain lesions...yet i have all the MS
> symptoms...Ive since had a
> positive ANA of 1:1280 but no other positive
> Antibodies so they said
> I cannot have lupus etc...and i had a negative test
> for myasthenia
> gravis...and they refuse to do the musk
> antibody....I was put on
> steroids of 80 miligrams...i felt somewhat
> better...especially
> around 40 milligrams...now Im down to 10mg...and Im
> hurting more in
> the legs and lower arms...spasticity is worse...and
> I fell again
> last week...they just say myapothy...and no reason
> for my
> symptoms...yet im positive babinski both
> legs...clonus in legs arms
> and face...myotonic in the
> hands...hyperreflexes...cognitive
> problems that are alot better...the neuropsych a
> year ago said i had
> organic brain syndrome...but from what did I get
> it?...I have
> definite relapses of symptoms and I get somewhat
> better but never
> completely...hotwater and heat makes me worse...Im
> alot better on
> the steroids..which now Im on a lower dose and i see
> symptoms
> returning....Ive been on steroids since
> January....put on 25
> pounds...moon faced and pot bellied now....not sure
> if the disease,
> meds, or what gets me depressed...think the not
> knowing what took my
> life and the person I once was away is what
> depresses me...if I knew
> I could deal with it...thanks for listening to
> me...I also get the
> MShug around my lower abdomen, groin...a very tight
> band
> feeling...uncomfortable...and I hope this makes
> sense what I
> typed...thank you so much....Michelle M,
>
>
> --- In UNdiagnosedMS@yahoogroups.com,
> "undiagnosedms" <dclary@c...>
> wrote:
> >
> > Hey guys! How is everyone???
> >
> > I've been looking for victims of this so called
> "MS Hug" to share
> > descriptions with. Anyone get this:
> >
> > I have had this really horrible cramping, tight,
> burning
> > pain...almost like my ribs are growing or
> something, just under my
> > bust line. I have found nothing to relieve the
> pain.
> >
> > Apparently, there is something called the "MS Hug"
> that is similar
> > to this. I'm going back to the neuro on the 13th
> so we'll see
> what
> > she says.
> >
> > If anyone knows what I'm talking about, please let
> me know how you
> > deal with/dealt with this pain. The only way I
> have found to get
> > rid of it is just to wait it out.
> >
> > I thought that maybe it was the Baclofen causing
> it, but I took
> the
> > Baclofen in the day today with no problems.
> Tongiht I'm feeling
> it
> > again.
> >
> > So...if anyone has any info for me, let me know.
> I can't really
> > find any websites with solid information on this
> hug, so if you've
> > got one, send it on over.
> >
> > Thanks guys!
> > ~Dana
>
>
>
>
>
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